CRY London Bridges Walk | The Tom Clabburn Memorial Fund

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Posted by PaulClabburn on Jun 24, 2018 in 2018, Awareness, Cardiac Risk in the Young, CRY London Bridges Walk

Thank you for walking the Bridges for @CRY_UK #12aweek

Some of Team Tom.

More than 50 people walked in memory of Tom and Claire at Cardiac Risk in the Young’s annual Heart of London Bridges Walk on Sunday, June 24.

It’s the 11th time we have walked and, yet again, we’re hugely grateful for the fantastic turn-out. We’re very lucky to have such support.

As CRY’s Chief Executive, Steve Cox, explained in a brief speech, one of the most important steps in CRY’s campaign to prevent Young Sudden Cardiac Deaths (YSCD) took place earlier this month.

For the first time, causes of death including SADS, ARVC and Short QT have been recognised by the World Health Organisation (WHO). You can read more here.

In Steve’s words: “We believe that once this new code is fully implemented it will finally be possible to establish that these cardiac conditions are one of the most common causes of death in young people and much more should be done by our government to prevent these tragedies.”

That could mean the eventual implementation of a national strategy.

Meanwhile, 12 young people aged 14-35 are dying every week.

CRY can’t campaign without your support so, whether you walked this year or in the past, thank you.

Paul and Ellen x

Posted by PaulClabburn on Jun 1, 2018 in 2018, Awareness, Cardiac Risk in the Young, CRY London Bridges Walk

Sign up for the @CRY_UK Heart of London Bridges Walk #12aweek

This year’s walk is on Sunday, June 24.

You can sign up here: https://www.c-r-y.org.uk/bridges-walk/

You don’t need to raise money, just walk the bridges and raise awareness of the more than 6,000 young adults we’ve lost to undiagnosed heart conditions since Tom died.

We’d love to see you there.

Posted by PaulClabburn on Apr 4, 2018 in 2018, Awareness, Cardiac Risk in the Young, CRY London Bridges Walk

Join us for @CRY_UK Heart of London Bridges walk 2018 #12AWeek

Supporting CRY.

CRY’s 12th annual Heart of London Bridges Walk will take place on Sunday, June 24, 2018.

You can register here: https://www.c-r-y.org.uk/events/events/cry-heart-of-london-bridges-walk-2018/

We will be taking part for the 11th year and, as ever, we would love to see you there to remember Tom and Claire.

You don’t need to raise sponsorship to take part, it’s enough to walk and raise awareness of the loss of 12 young people a week to undiagnosed heart conditions.

Paul and Ellen x

Posted by PaulClabburn on Jul 9, 2017 in 2017, Awareness, Cardiac Risk in the Young, CRY London Bridges Walk, Fund-raising event

Ten years of crossing bridges with @CRY_UK

CRY, Bridges Walk 2017, Team Tom, July 2017

Some of Team Tom at the start of the walk.

Thank you! More than 50 people turned-out for Team Tom to mark the 10th time we have taken part in CRY’s Heart of London Bridges Walk.

This year’s walk always felt particularly significant. A decade is a long time and with the event coming before the anniversary of Tom’s death, it was redolent with memories. To see so many people make extraordinary efforts to attend, therefore, was inspiring.

CRY’s estimate at time of writing is that we were among 1,400 people who took part. Looking around Potters Fields, it was wonderful to see how many were waiting to walk.

Wonderful but troubling. A story in the papers earlier this year told of a parent who discovered their 14-year-old son dead in bed. They had never heard of CRY, never heard of cardiac screening. All the things we were saying 10 years ago.

It raises the question – has there been progress? Is it worth giving up a Sunday to slog around 10k in the heat?

We’d say ‘Yes’.

Plainly cardiac screening is still not available as of right to young people. However, CRY are screening more people than ever before, more than 23,000 last year, and their research programme is a leader in its field. The scientific case for screening appears to be gaining ground.

The walk remains a key part in CRY’s armoury, its largest public event. It is not simply the sight of people walking or the funds raised. It also raises awareness up and down the country as local media tells the stories of those taking part.

It is one battle in a long and gruelling war. Ultimately, the injustice that is 12 young people dying each week because of undiagnosed heart conditions will end. The evidence will become too strong to be ignored.

And when it does, everyone who has ever walked will have played a part:

“Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.” Margaret Mead.

Thank you for walking. It means more to us than words can say.

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Posted by PaulClabburn on May 28, 2017 in 2017, Awareness, CRY London Bridges Walk

Please join us on July 9 for @CRY_UK London Bridges Walk

Tom with Claire at a BBC roadshow

CRY’s 11th Heart of London Bridges Walk will be held on Sunday, July 9. We’ll be walking again to remember Tom and Claire.

Please join us if you can – it will be our 10th year of taking part and we’d love to see you.

With all the calls on people to raise money, great if you can but you don’t have to be sponsored. The most important thing is to walk. Just bring yourself and help to raise awareness.

You can register online or on the day and full details are here.

Hope to see you there.

Paul and Ellen x

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Posted by PaulClabburn on Jun 26, 2016 in 2016, Awareness, Cardiac Risk in the Young, CRY London Bridges Walk, Fund-raising event

Team Tom turnout does @CRY_UK proud

Team Tom IX – well, two-thirds of them.

Around 50 people walked for Team Tom IX in memory of Tom and Claire on CRY’s 10th Heart of London Bridges Walk on Sunday, June 26.

It was a fantastic turnout and we are grateful for the effort people yet again made. Given that this was our ninth year of walking, to maintain such numbers is remarkable and a tribute to all involved.

Ellen said: “It was lovely to see so many people and we really appreciated that they had given up their time to walk with us and for CRY.”