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Posted by on May 12, 2019 in 2019, Cardiac Risk in the Young, CRY London Bridges Walk

Why @CRY_UK London Bridges Walk 2019 matters #12aweek

CRY's seminar May 2019

Dr Steven Cox, CRY’s Chief Executive, opens the conference.

CRY held a conference on understanding the impact of its research at St George’s Hospital, Tooting, on Saturday, May 11.

It was a fascinating afternoon, full of information about the mind-boggling progress made by CRY’s researchers – all of whom are paid for by you.

Among the speakers, Professor Mary Sheppard, who head’s CRY’s Centre of Cardiac Pathology, explained the centre now holds the largest cardiology database in the world. CRY consultant cardiologist, Professor Sanjay Sharma, who leads CRY’s screening programme, pointed out that the NHS misses out on diagnosing the 80% of young people among whom death is the first symptom of an underlying cardiac problem.

How does this tie in with the 2019 Heart of London Bridges Walk, on Sunday June 23rd?

This year, the National Screening Committee will once again consider whether there should be a nationwide cardiac screening programme for young adults. In the run-up, raising awareness of what CRY stands for – its screening programme, it’s internationally renowned research – remains as important as ever.

Please help by joining us on the walk. You don’t have to raise funds, you just need to show your support. It really does count.

You can register here.

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Posted by on Jun 24, 2018 in 2018, Awareness, Cardiac Risk in the Young, CRY London Bridges Walk

Thank you for walking the Bridges for @CRY_UK #12aweek

Bridges Walk 2018

Some of Team Tom.

More than 50 people walked in memory of Tom and Claire at Cardiac Risk in the Young’s annual Heart of London Bridges Walk on Sunday, June 24.

It’s the 11th time we have walked and, yet again, we’re hugely grateful for the fantastic turn-out. We’re very lucky to have such support.

As CRY’s Chief Executive, Steve Cox, explained in a brief speech, one of the most important steps in CRY’s campaign to prevent Young Sudden Cardiac Deaths (YSCD) took place earlier this month.

For the first time, causes of death including SADS, ARVC and Short QT have been recognised by the World Health Organisation (WHO). You can read more here.

In Steve’s words: “We believe that once this new code is fully implemented it will finally be possible to establish that these cardiac conditions are one of the most common causes of death in young people and much more should be done by our government to prevent these tragedies.”

That could mean the eventual implementation of a national strategy.

Meanwhile, 12 young people aged 14-35 are dying every week.

CRY can’t campaign without your support so, whether you walked this year or in the past, thank you.

Paul and Ellen x

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Posted by on Apr 4, 2018 in 2018, Awareness, Cardiac Risk in the Young, CRY London Bridges Walk

Join us for @CRY_UK Heart of London Bridges walk 2018 #12AWeek

Supporting CRY.

 

CRY’s 12th annual Heart of London Bridges Walk will take place on Sunday, June 24, 2018.

You can register here: https://www.c-r-y.org.uk/events/events/cry-heart-of-london-bridges-walk-2018/

We will be taking part for the 11th year and, as ever, we would love to see you there to remember Tom and Claire.

You don’t need to raise sponsorship to take part, it’s enough to walk and raise awareness of the loss of 12 young people a week to undiagnosed heart conditions.

Paul and Ellen x

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Posted by on Jul 9, 2017 in 2017, Awareness, Cardiac Risk in the Young, CRY London Bridges Walk, Fund-raising event

Ten years of crossing bridges with @CRY_UK

CRY, Bridges Walk 2017, Team Tom, July 2017

Some of Team Tom at the start of the walk.

Thank you! More than 50 people turned-out for Team Tom to mark the 10th time we have taken part in CRY’s Heart of London Bridges Walk.

This year’s walk always felt particularly significant. A decade is a long time and with the event coming before the anniversary of Tom’s death, it was redolent with memories. To see so many people make extraordinary efforts to attend, therefore, was inspiring.

CRY’s estimate at time of writing is that we were among 1,400 people who took part. Looking around Potters Fields, it was wonderful to see how many were waiting to walk.

Wonderful but troubling. A story in the papers earlier this year told of a parent who discovered their 14-year-old son dead in bed. They had never heard of CRY, never heard of cardiac screening. All the things we were saying 10 years ago.

It raises the question – has there been progress? Is it worth giving up a Sunday to slog around 10k in the heat?

We’d say ‘Yes’.

Plainly cardiac screening is still not available as of right to young people. However, CRY are screening more people than ever before, more than 23,000 last year, and their research programme is a leader in its field. The scientific case for screening appears to be gaining ground.

The walk remains a key part in CRY’s armoury, its largest public event. It is not simply the sight of people walking or the funds raised. It also raises awareness up and down the country as local media tells the stories of those taking part.

It is one battle in a long and gruelling war. Ultimately, the injustice that is 12 young people dying each week because of undiagnosed heart conditions will end. The evidence will become too strong to be ignored.

And when it does, everyone who has ever walked will have played a part:

“Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.” Margaret Mead.

Thank you for walking. It means more to us than words can say.

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Posted by on May 28, 2017 in 2017, Awareness, CRY London Bridges Walk

Please join us on July 9 for @CRY_UK London Bridges Walk

Tom with Claire at a BBC roadshow

Tom with Claire at a BBC roadshow

 

CRY’s 11th Heart of London Bridges Walk will be held on Sunday, July 9. We’ll be walking again to remember Tom and Claire.

Please join us if you can – it will be our 10th year of taking part and we’d love to see you.

With all the calls on people to raise money, great if you can but you don’t have to be sponsored. The most important thing is to walk. Just bring yourself and help to raise awareness.

You can register online or on the day and full details are here.

Hope to see you there.

Paul and Ellen x

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