CRY London Bridges Walk | The Tom Clabburn Memorial Fund

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Posted by PaulClabburn on Jun 23, 2019 in 2019, Awareness, Cardiac Risk in the Young, CRY London Bridges Walk

Thank you for taking part in the @CRY_UK Heart of London Bridges walk #12aweek

Reflection.

More than 40 people walked in memory of Tom and Claire at CRY’s Heart of London Bridges walk on Sunday, June 23.

The walk, the 13th organised by CRY, started and finished in Southwark Park and attracted more than 1,500 CRY supporters.

“It was nice to see so many people turning up for Team Tom,” said Ellen Clabburn. “We’ve been taking part for 12 years and we’re very grateful to people for making the commitment and giving up their time.”

Some of Team Tom XII

Posted by PaulClabburn on Jun 10, 2019 in 2019, Awareness, Cardiac Risk in the Young, CRY London Bridges Walk

Heart of London Bridges Walk fast approaching – support @CRY_UK #12aweek

The Note-Orious choir will be among those providing musical entertainment.

In just under a fortnight, this year’s CRY Heart of London Bridges Walk will take place on Sunday, June 23. Join us if you can as part of “Team Tom XII”.

You can register here. There’s a new start and finish point, both in Southwark Park, Gomm Road, London, SE16 2TX. The walk begins at 11am after a minute’s silence. There’s also an ‘improved route,’ a first CRY family picnic and musical performances.

But at the centre, as ever, is the walk. You don’t have to raise money unless you want to – just put one foot in front of the other to show support for CRY and to raise awareness. Twelve young people aged between 14-35 die each week of undiagnosed heart conditions in the UK.

Posted by PaulClabburn on May 26, 2019 in 2019, Awareness, Brentford, Cardiac Risk in the Young, CRY London Bridges Walk

A month to go until the @CRY_UK Heart of London Bridges Walk #12aweek

Some of Team Tom 2018.

This year’s Heart of London Bridges Walk takes place on Sunday, June 23, and we’d love to see you there as part of “Team Tom XII”.

You can register here. Be aware there’s a new start and finish point, both in Southwark Park, Gomm Road, London, SE16 2TX.

You don’t have to raise money unless you want to – just walk to show support for CRY and to raise awareness. Twelve young people aged between 14-35 die each week of undiagnosed heart conditions in the UK.

And if you want to be reminded of the impact, spend a couple of minutes here listening to CRY patron and former Brentford manager Andy Scott speak about the death from a cardiac condition of 28-year-old Bees technical director Robert Rowan last year.

Posted by PaulClabburn on May 12, 2019 in 2019, Cardiac Risk in the Young, CRY London Bridges Walk

Why @CRY_UK London Bridges Walk 2019 matters #12aweek

Dr Steven Cox, CRY’s Chief Executive, opens the conference.

CRY held a conference on understanding the impact of its research at St George’s Hospital, Tooting, on Saturday, May 11.

It was a fascinating afternoon, full of information about the mind-boggling progress made by CRY’s researchers – all of whom are paid for by you.

Among the speakers, Professor Mary Sheppard, who head’s CRY’s Centre of Cardiac Pathology, explained the centre now holds the largest cardiology database in the world. CRY consultant cardiologist, Professor Sanjay Sharma, who leads CRY’s screening programme, pointed out that the NHS misses out on diagnosing the 80% of young people among whom death is the first symptom of an underlying cardiac problem.

How does this tie in with the 2019 Heart of London Bridges Walk, on Sunday June 23rd?

This year, the National Screening Committee will once again consider whether there should be a nationwide cardiac screening programme for young adults. In the run-up, raising awareness of what CRY stands for – its screening programme, it’s internationally renowned research – remains as important as ever.

Please help by joining us on the walk. You don’t have to raise funds, you just need to show your support. It really does count.

You can register here.

Posted by PaulClabburn on Jun 24, 2018 in 2018, Awareness, Cardiac Risk in the Young, CRY London Bridges Walk

Thank you for walking the Bridges for @CRY_UK #12aweek

Some of Team Tom.

More than 50 people walked in memory of Tom and Claire at Cardiac Risk in the Young’s annual Heart of London Bridges Walk on Sunday, June 24.

It’s the 11th time we have walked and, yet again, we’re hugely grateful for the fantastic turn-out. We’re very lucky to have such support.

As CRY’s Chief Executive, Steve Cox, explained in a brief speech, one of the most important steps in CRY’s campaign to prevent Young Sudden Cardiac Deaths (YSCD) took place earlier this month.

For the first time, causes of death including SADS, ARVC and Short QT have been recognised by the World Health Organisation (WHO). You can read more here.

In Steve’s words: “We believe that once this new code is fully implemented it will finally be possible to establish that these cardiac conditions are one of the most common causes of death in young people and much more should be done by our government to prevent these tragedies.”

That could mean the eventual implementation of a national strategy.

Meanwhile, 12 young people aged 14-35 are dying every week.

CRY can’t campaign without your support so, whether you walked this year or in the past, thank you.

Paul and Ellen x

Posted by PaulClabburn on Jun 1, 2018 in 2018, Awareness, Cardiac Risk in the Young, CRY London Bridges Walk

Sign up for the @CRY_UK Heart of London Bridges Walk #12aweek

This year’s walk is on Sunday, June 24.

You can sign up here: https://www.c-r-y.org.uk/bridges-walk/

You don’t need to raise money, just walk the bridges and raise awareness of the more than 6,000 young adults we’ve lost to undiagnosed heart conditions since Tom died.

We’d love to see you there.

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