Posted by PaulClabburn on Jul 9, 2017 in 2017, Awareness, Cardiac Risk in the Young, CRY London Bridges Walk, Fund-raising event
Some of Team Tom at the start of the walk.
Thank you! More than 50 people turned-out for Team Tom to mark the 10th time we have taken part in CRY’s Heart of London Bridges Walk.
This year’s walk always felt particularly significant. A decade is a long time and with the event coming before the anniversary of Tom’s death, it was redolent with memories. To see so many people make extraordinary efforts to attend, therefore, was inspiring.
CRY’s estimate at time of writing is that we were among 1,400 people who took part. Looking around Potters Fields, it was wonderful to see how many were waiting to walk.
Wonderful but troubling. A story in the papers earlier this year told of a parent who discovered their 14-year-old son dead in bed. They had never heard of CRY, never heard of cardiac screening. All the things we were saying 10 years ago.
It raises the question – has there been progress? Is it worth giving up a Sunday to slog around 10k in the heat?
We’d say ‘Yes’.
Plainly cardiac screening is still not available as of right to young people. However, CRY are screening more people than ever before, more than 23,000 last year, and their research programme is a leader in its field. The scientific case for screening appears to be gaining ground.
The walk remains a key part in CRY’s armoury, its largest public event. It is not simply the sight of people walking or the funds raised. It also raises awareness up and down the country as local media tells the stories of those taking part.
It is one battle in a long and gruelling war. Ultimately, the injustice that is 12 young people dying each week because of undiagnosed heart conditions will end. The evidence will become too strong to be ignored.
And when it does, everyone who has ever walked will have played a part:
“Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.” Margaret Mead.
Thank you for walking. It means more to us than words can say.
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Posted by PaulClabburn on May 28, 2017 in 2017, Awareness, CRY London Bridges Walk
Tom with Claire at a BBC roadshow
CRY’s 11th Heart of London Bridges Walk will be held on Sunday, July 9. We’ll be walking again to remember Tom and Claire.
Please join us if you can – it will be our 10th year of taking part and we’d love to see you.
With all the calls on people to raise money, great if you can but you don’t have to be sponsored. The most important thing is to walk. Just bring yourself and help to raise awareness.
You can register online or on the day and full details are here.
Hope to see you there.
Paul and Ellen x
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Posted by PaulClabburn on Apr 24, 2017 in 2017, Awareness, Cardiac Risk in the Young, Fund-raising event
Don’t look down! Hannah gets set.
Claire’s cousin Hannah Dunn successfully abseiled down the 170 metre Spinnaker Tower in Portsmouth on Saturday, April 22, to raise money for Tom and Claire’s Fund.
Hannah said: “Well, I did it! The most terrifying experience was when going over the edge but once on the way it was fantastic.”
Her effort raised a total of £1406 which will be split between Tom and Claire’s Fund and St. Barnabas House hospice in Worthing.
Hannah, who says she is an ‘adrenaline junky’ after jumping from 13,000 feet over Salisbury Plain to raise money for CRY in her first skydive in 2015, says she’s now planning what challenge to take on next.
If you want to support Hannah, you can still do so here.
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Posted by PaulClabburn on Apr 18, 2017 in 2017, Fund-raising event
Spinnaker Town, Portsmouth. Author: Rhys Jones. Licensed by Creative Commons.
Not content with flinging herself from planes, Claire’s cousin Hannah Dunn is now planning to abseil down the 170 metre Spinnaker Tower in Portsmouth on Saturday, April 22.
She’ll be raising money for Tom and Claire’s Fund and St. Barnabas House hospice in Worthing.
Hannah, who says she is now officially an ‘adrenaline junky’, jumped from 13,000 feet over Salisbury Plain to raise money for CRY in her first skydive in 2015.
If you want to support Hannah in her latest escapade, you can do so here.
Posted by PaulClabburn on Apr 7, 2017 in 2017, Cardiac Risk in the Young, CRY screenings, Ealing
Ellen with members of the CRY team; left to right, Ralph Knox, Sheila Pitt, Dr Gemma Parry-Williams, Hannah Lowry and Muge Pancar.
Ninety young people aged between 14-35 were screened by Cardiac Risk in the Young at Drayton Manor High School, Hanwell, on April 6.
Both Tom and Ellen attended Drayton Manor, which was hosting screenings for the second time. Of those tested, six were referred for further investigation.
Ellen Clabburn said: “We’d like to thank CRY for carrying out the screenings with their usual professionalism, Drayton Manor High School for providing the facilities and, of course, all those who have raised the funds which mean the screenings can take place and be free to those attending.”
The next screenings sponsored by Tom and Claire’s Fund are planned for November in Ealing.
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Posted by PaulClabburn on Mar 27, 2017 in 2017, Awareness, Cardiac Risk in the Young, CRY screenings
Our latest free heart screenings for young people aged between 14-35 are now fully booked.
The screenings are taking place on Thursday, April 6, at Drayton Manor High School, Drayton Bridge Road, London, W7 1EU.
If you have booked, please make every effort to attend. If you can’t attend for any reason, please let CRY know.
If you have any queries, please contact CRY rather than the school or us. Contact details for CRY are here.
Posted by PaulClabburn on Mar 20, 2017 in 2017, Cardiac Risk in the Young, CRY screenings, Ealing, Tom Clabburn
There are 10 or fewer places left to book for our latest free heart screenings for young people aged between 14-35. The screenings are taking place on Thursday, April 6, at Drayton Manor High School, Drayton Bridge Road, London, W7 1EU.
You can book a screening by going here.
If you do book, please make every effort to attend. If you can’t attend for any reason, please let CRY know.
If you have any queries, please contact CRY rather than the school or us. Contact details for CRY are here.
Posted by PaulClabburn on Mar 3, 2017 in 2017, Cardiac Risk in the Young, CRY screenings, Ealing
Echocardiogram machine bought with money raised by Tom and Claire’s Fund.
Our latest free heart screenings for young people aged between 14-35 will take place on Thursday, April 6, at Drayton Manor High School, Drayton Bridge Road, London, W7 1EU.
You can book a CRY screening by going here .
If you do book, please make every effort to attend. If you can’t attend for any reason, please let CRY know. Our screenings have always been over-subscribed. If you can’t get there, somebody else can.
If you have any queries, please contact CRY rather than the school or us. Contact details for CRY are here.
We are extremely grateful to Drayton Manor High School, Tom and Ellen’s old school, for hosting the event.
To date more than 2,400 young people have been screened at events sponsored by Tom and Claire’s Fund. So to all of you who have raised the money which allows the screenings to take place, thank you. You have saved lives.
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