Posted by PaulClabburn on May 26, 2019 in 2019, Awareness, Brentford, Cardiac Risk in the Young, CRY London Bridges Walk
Some of Team Tom 2018.
This year’s Heart of London Bridges Walk takes place on Sunday, June 23, and we’d love to see you there as part of “Team Tom XII”.
You can register here. Be aware there’s a new start and finish point, both in Southwark Park, Gomm Road, London, SE16 2TX.
You don’t have to raise money unless you want to – just walk to show support for CRY and to raise awareness. Twelve young people aged between 14-35 die each week of undiagnosed heart conditions in the UK.
And if you want to be reminded of the impact, spend a couple of minutes here listening to CRY patron and former Brentford manager Andy Scott speak about the death from a cardiac condition of 28-year-old Bees technical director Robert Rowan last year.
Posted by PaulClabburn on May 12, 2019 in 2019, Cardiac Risk in the Young, CRY London Bridges Walk
Dr Steven Cox, CRY’s Chief Executive, opens the conference.
CRY held a conference on understanding the impact of its research at St George’s Hospital, Tooting, on Saturday, May 11.
It was a fascinating afternoon, full of information about the mind-boggling progress made by CRY’s researchers – all of whom are paid for by you.
Among the speakers, Professor Mary Sheppard, who head’s CRY’s Centre of Cardiac Pathology, explained the centre now holds the largest cardiology database in the world. CRY consultant cardiologist, Professor Sanjay Sharma, who leads CRY’s screening programme, pointed out that the NHS misses out on diagnosing the 80% of young people among whom death is the first symptom of an underlying cardiac problem.
How does this tie in with the 2019 Heart of London Bridges Walk, on Sunday June 23rd?
This year, the National Screening Committee will once again consider whether there should be a nationwide cardiac screening programme for young adults. In the run-up, raising awareness of what CRY stands for – its screening programme, it’s internationally renowned research – remains as important as ever.
Please help by joining us on the walk. You don’t have to raise funds, you just need to show your support. It really does count.
You can register here.
Posted by PaulClabburn on Apr 29, 2019 in 2019, Awareness, Cardiac Risk in the Young, Fund-raising event
Isa with daughter Flossie at the finish.
Mother and son Isabel and Matthew Turner have raised more than £5,700 for CRY core funding by running in memory of Tom and Claire in this year’s London Marathon on Sunday, April 28.
In a first marathon for both, Matthew finished in 04:01:26 while Isa, who’d suffered a foot injury in training, showed great resilience to finish in 06:45:26.
Isa said afterwards: “Matthew was very fast and I was very slow and am in great pain but I’m so proud to have done it in memory of two such special people.”
A tremendous effort by both and their fund-raising page is still open here.
Isa and Matthew before the race.
Posted by PaulClabburn on Apr 21, 2019 in 2019, Cardiac Risk in the Young, Fund-raising event
Isa and Matthew Turner (mother and son) are running the London Marathon on Sunday April 28 in memory of Claire and Tom.
They’ll be raising funds for CRY’s core programmes and also raising awareness of the charity’s screening programme.
It’s a first marathon for each of them and so will be tough but Matthew may hold a slight advantage, being 19 and a rower while Isa is 51 and recovering from a foot injury!
She said: “For the last few years I have been helping out at the CRY reception centre after the marathon so I really should know better. This is a bonkers idea! But it feels too important not to do it. I will run every step of the way with Tom and Claire in my heart.”
Matthew added: “CRY do such amazing work and I am delighted to be supporting them while running in memory of Tom and Claire. All the pain will be worth it for the huge impact the charity can achieve with the money raised.”
Ellen Clabburn said: “We’re very proud of what they are doing. It will be a brilliant achievement. We know Isa’s been struggling with her injury but we also know how determined they both are.”
You can support them here and if you are going to the event, please give them a big shout on the day.
Posted by PaulClabburn on Nov 26, 2018 in 2018, Awareness, Cardiac Risk in the Young, Donations, Ealing
Left to right: Alice, Neo, Josie and Vicky.
A cheque for £250 has been donated to Tom and Claire’s Fund and @CRY_UK by Munson’s Coffee and Eats on St Mary’s Road, South Ealing.
Munson’s have supported the fund for many years. Claire was a regular customer and her memory remains strong.
Vicky Pearson, a CRY supporter and family friend who accepted the cheque on behalf of the fund, said “We very much appreciate the ongoing support of Mario and the baristas and this donation will contribute towards further heart screenings in Ealing.
“Munson’s holds a special place in our hearts and in the community.”
Posted by PaulClabburn on Nov 22, 2018 in 2018, Awareness, Cardiac Risk in the Young
With Ruth Cadbury MP, centre, CRY patron Andy Scott, far left, and CRY Chief Executive, Steve Cox, far right.
CRY has a lot of unsung heroes. All over the country people raise money for free screenings and ground-breaking research; devote their time to raising awareness of the dangers of undiagnosed heart conditions in young people. They don’t make a fuss, they simply deliver.
The charity’s annual All-Party Parliamentary Group reception at the House of Commons, held this year on Wednesday, November 21, was a chance to celebrate their work.
You meet people from all walks of life; those who have lost children, siblings, parents; medics pushing scientific boundaries in the search for answers; those who support CRY because they believe losing 12 young people a week to undiagnosed heart conditions is simply wrong.
As usual, one of those attending was CRY patron Andy Scott. Year after year, the former Brentford manager, now Sporting Director at Watford, gives up his time for CRY. He’s supported our family by turning out at our screenings. He’s supported many more CRY families, directly or indirectly, by working for well over a decade to raise awareness.
This year he was at parliament while mourning the loss of a friend, Robert Rowan, Brentford Football Club’s technical director, who died of heart failure at the age of 28 earlier this month. It’s a tribute to Andy’s commitment to CRY that he chose to attend in such circumstances. On the other hand, it’s not surprising.
It was also noticeable how many MPs at the reception were there because they had a direct connection to a CRY family. One such was our own Brentford and Isleworth MP, Ruth Cadbury. Her son, Joe, was a friend of Tom’s, dating back to their time together at Little Ealing Primary School. Ruth has been a long-standing supporter of CRY and, again, it’s not surprising she chose to attend.
Within the next year, the National Screening Committee are due to consider the merits of a UK-wide screening programme for young people. Quite rightly, they’ll put great weight on the scientific evidence although, as CRY’s chief executive, Steve Cox, pointed out, they might also consider the human cost. It’s not just statistics we’re dealing with, it’s the impact of young lives lost.
The NSC’s last review in 2015 left me with more questions than answers. Will it be different this time? Now that really would be surprising.
CRY’s Consultant Cardiologist, Professor Sanjay Sharma, with CRY patron and Tottenham Hotspur legend, Pat Jennings.
Posted by PaulClabburn on Nov 5, 2018 in 2018, Cardiac Risk in the Young, CRY screenings
CRY clinic administrator Jodie Egerton with Kavi Luchowa, a former teammate of Tom’s at Hanwell Town FC, who attended the screening.
Ninety young people were tested at this year’s Cardiac Risk in the Young heart screenings in Ealing.
The free event for 14-35 year olds, sponsored by Tom and Claire’s Fund, took place at the Florence Road surgery, Florence Road, on Sunday November 4.
Paul Clabburn said: “As ever, we’re very grateful to the CRY team for the friendly and professional way they go about their work. We also appreciate the efforts of Dr Evans and all at Florence Road for providing us with a venue for the screenings. They’ve hosted CRY every year since 2011, which is a tremendous show of support.
“A lot of people have raised money for Tom and Claire’s Fund so that the screenings can take place. We couldn’t do it without them and we cannot thank them enough.”
Members of the CRY team at Ealing.
Posted by PaulClabburn on Nov 4, 2018 in 2018, Cardiac Risk in the Young, CRY screenings
If you’ve booked a free Cardiac Risk in the Young heart screening for 14-35 year-olds in Ealing today, please don’t forget to attend.
CRY clinic administrator Jodie Egerton will greet you and answer any questions you may have.
We look forward to seeing you!
