Posted by PaulClabburn on Sep 5, 2019 in 2019, Awareness, Ealing, The Andrew Carter Memorial Mile
Andrew’s parents join runners at the start of last year’s race.
Andrew Carter died after suffering cardiac arrest during the 2014 Ealing Half Marathon. He was 33-years-old.
Every year since, Ealing Half Marathon have held the Andrew Carter Memorial Mile in Lammas Park, Ealing, to raise money for The Tom Clabburn Memorial Fund and Cardiac Risk in the Young. You can register free of charge here.
The organisers say you can run, jog or walk the course and that it’s suitable for all abilities and ages.
They add: “Come and join us and run this great course, it is the perfect way to start a Saturday morning and raise funds for a worthy cause. All we ask is that all runners make a donation to the collection tin on the day or donate online here to the Tom Clabburn Fund.”
Posted by PaulClabburn on Jul 31, 2019 in 2019, Awareness, Cardiac Risk in the Young, CRY screenings
Help to prevent 12-a-week.
A draft “rapid review” carried out for the UK National Screening Committee has recommended no change in the current position on heart screening for young adults – ie there shouldn’t be any.
You can read the review here, where you’ll also find a feedback form. Please make your voice heard. Your comments must be made by September 7, 2019.
CRY’s initial response by Chief Executive Steve Cox included: “The NSC consultation document FAILS to demonstrate the impact young sudden cardiac deaths have on our society.
“It FAILS to stress that 1 in 300 people screened have a cardiac condition that can benefit from treatment or lifestyle advice.
“It FAILS to objectively evaluate the overlap between the current routine use of the ECG in the NHS / medical practice for general diagnostics and monitoring and its role in cardiac screening.
“It is unbalanced and has interpreted the evidence subjectively with the apparent intent of ‘kicking the ball into the long grass’.”
CRY would be grateful if you’d send them a copy of your submission. Email: cry@c-r-y.org.uk
Posted by PaulClabburn on Jul 11, 2019 in 2019, Awareness, Cardiac Risk in the Young, Donations, Fund-raising event
One for the road.
This summer, Nico Mendoza-Sharman will be tackling the Mongol Rally and among the beneficiaries will be CRY.
Nico’s team, ‘Baby Don’t Yurt Me’, will attempt to drive a one litre Volkswagen Polo 10,000 miles, from Prague in the Czech Republic to Ulan-Ude in Siberia via Mongolia.
The event’s organisers write: “Any old dullard can purchase a 4×4 that could easily make it across the surface of the moon and drive a quarter of the world’s circumference, and that, is exactly what the Mongol Rally is not about.
“It’s about small. It’s about stupid. It’s about unsuitability. It’s about humour. We have purposely set the bar for engine size to a mere 1 Litre – or 1000cc. We shall allow up to a 1.2 for those of you who can’t handle a whole litre of courage …”
We’re hugely grateful that Nico and the team have selected CRY as one of the four charities they’re raising money for. You can support them by donating here.
Posted by PaulClabburn on Jun 23, 2019 in 2019, Awareness, Cardiac Risk in the Young, CRY London Bridges Walk
Reflection.
More than 40 people walked in memory of Tom and Claire at CRY’s Heart of London Bridges walk on Sunday, June 23.
The walk, the 13th organised by CRY, started and finished in Southwark Park and attracted more than 1,500 CRY supporters.
“It was nice to see so many people turning up for Team Tom,” said Ellen Clabburn. “We’ve been taking part for 12 years and we’re very grateful to people for making the commitment and giving up their time.”
Some of Team Tom XII
Posted by PaulClabburn on Jun 10, 2019 in 2019, Awareness, Cardiac Risk in the Young, CRY London Bridges Walk
The Note-Orious choir will be among those providing musical entertainment.
In just under a fortnight, this year’s CRY Heart of London Bridges Walk will take place on Sunday, June 23. Join us if you can as part of “Team Tom XII”.
You can register here. There’s a new start and finish point, both in Southwark Park, Gomm Road, London, SE16 2TX. The walk begins at 11am after a minute’s silence. There’s also an ‘improved route,’ a first CRY family picnic and musical performances.
But at the centre, as ever, is the walk. You don’t have to raise money unless you want to – just put one foot in front of the other to show support for CRY and to raise awareness. Twelve young people aged between 14-35 die each week of undiagnosed heart conditions in the UK.
Posted by PaulClabburn on May 26, 2019 in 2019, Awareness, Brentford, Cardiac Risk in the Young, CRY London Bridges Walk
Some of Team Tom 2018.
This year’s Heart of London Bridges Walk takes place on Sunday, June 23, and we’d love to see you there as part of “Team Tom XII”.
You can register here. Be aware there’s a new start and finish point, both in Southwark Park, Gomm Road, London, SE16 2TX.
You don’t have to raise money unless you want to – just walk to show support for CRY and to raise awareness. Twelve young people aged between 14-35 die each week of undiagnosed heart conditions in the UK.
And if you want to be reminded of the impact, spend a couple of minutes here listening to CRY patron and former Brentford manager Andy Scott speak about the death from a cardiac condition of 28-year-old Bees technical director Robert Rowan last year.
Posted by PaulClabburn on May 12, 2019 in 2019, Cardiac Risk in the Young, CRY London Bridges Walk
Dr Steven Cox, CRY’s Chief Executive, opens the conference.
CRY held a conference on understanding the impact of its research at St George’s Hospital, Tooting, on Saturday, May 11.
It was a fascinating afternoon, full of information about the mind-boggling progress made by CRY’s researchers – all of whom are paid for by you.
Among the speakers, Professor Mary Sheppard, who head’s CRY’s Centre of Cardiac Pathology, explained the centre now holds the largest cardiology database in the world. CRY consultant cardiologist, Professor Sanjay Sharma, who leads CRY’s screening programme, pointed out that the NHS misses out on diagnosing the 80% of young people among whom death is the first symptom of an underlying cardiac problem.
How does this tie in with the 2019 Heart of London Bridges Walk, on Sunday June 23rd?
This year, the National Screening Committee will once again consider whether there should be a nationwide cardiac screening programme for young adults. In the run-up, raising awareness of what CRY stands for – its screening programme, it’s internationally renowned research – remains as important as ever.
Please help by joining us on the walk. You don’t have to raise funds, you just need to show your support. It really does count.
You can register here.
Posted by PaulClabburn on Apr 29, 2019 in 2019, Awareness, Cardiac Risk in the Young, Fund-raising event
Isa with daughter Flossie at the finish.
Mother and son Isabel and Matthew Turner have raised more than £5,700 for CRY core funding by running in memory of Tom and Claire in this year’s London Marathon on Sunday, April 28.
In a first marathon for both, Matthew finished in 04:01:26 while Isa, who’d suffered a foot injury in training, showed great resilience to finish in 06:45:26.
Isa said afterwards: “Matthew was very fast and I was very slow and am in great pain but I’m so proud to have done it in memory of two such special people.”
A tremendous effort by both and their fund-raising page is still open here.
Isa and Matthew before the race.
