Posted by PaulClabburn on Sep 3, 2015 in 2015, Awareness, Cardiac Risk in the Young, Fund-raising event
The Andrew Carter Memorial Mile in aid of Tom and Claire’s Fund and CRY will take place in Lammas Park, Ealing, on Saturday, September 5, at 11am. You can sign up here.
Andrew took part in the 2014 Ealing Half Marathon, collapsing shortly before the end following a cardiac arrest. He passed away the following Wednesday.
The event is being organised by Kelvin Walker, organiser of the Ealing Half Marathon, who said: “Andrew’s family are keen to promote the great work which CRY undertake and hope that this mile will help raise funds to enable more screening to take place.
“The mile is for all abilities and is free to enter – all that we ask is for a donation to be made either online here or on the day. We look forward to seeing everyone there.”
The next free CRY screening event in Ealing for those aged 14-35, sponsored by Tom and Claire’s Fund, will be held on Sunday, November 15. Details of how to book will appear on this site nearer the time.
Posted by PaulClabburn on Sep 2, 2015 in 2015, Awareness, Book sale, Claire Prosser, Fund-raising event
Claire and Ellen at the 2014 Brentford Festival.
You can grab some autumn reading from a bookstall in aid of Tom and Claire’s Fund at the Brentford Festival this coming Sunday, September 6.
Members of Claire’s book group, Anne Marie Reilly, Mariita Eager, Debbie Young, Justine O’Driscoll and Vanessa Boulter, are organising the event. Anne Marie said: “Last year for the first time Claire and Ellen had a CRY bookstall at the Festival.
“It was a great success and Claire was delighted to have the opportunity to talk to a new group of local residents and increase awareness about the work of CRY and also raise some money.
“We thought we would like to carry on the event in memory of Claire and to continue her good work for CRY. Do come along and support us and enjoy the festivities.”
The Brentford Festival is a well established annual community-led event with live bands, food and drink, rides, stalls and more. It takes place from 12 noon to 6 pm, in Blondin Park, Ealing. Full details here.
Posted by PaulClabburn on Aug 27, 2015 in 2015, Awareness, Fund-raising event
Hannah: “Coming out of the plane is bonkers”.
Hannah Dunn, a cousin of Claire’s, jumped from 13,000 feet over Salisbury Plain in her first skydive – all in aid of Tom and Claire’s Fund.
If memory serves correctly, it’s the first time anyone’s ever thrown themselves into the ether for the Fund and you can watch the video of Hannah’s tandem skydive here.
“I’ve always said I wanted to do a parachute jump, so imagine my surprise at Xmas when I opened my present from my husband for a tandem parachute jump,” said Hannah, who has raised at least £1,200.
“I am so pleased to be able to give something back to CRY which I know is an amazing charity. This was in loving memory of Tom Clabburn & Claire Prosser.”
Hannah jumped with The Army Parachute Association, based at Skydive Netheravon, Wiltshire, on August 16.
Thanks to Hannah for a brilliant first for the Fund and you can still support her here.
Posted by PaulClabburn on Aug 7, 2015 in 2015, Cardiac Risk in the Young, CRY screenings
Tom Clabburn: “…so rare.” But not in the sense the UK NSC meant.
The announcement by the UK National Screening Committee (UK NSC) that it will not be recommending a national cardiac screening programme for young people aged 12-39 left me, as with much in life, with more questions than answers, a healthy dose of bewilderment, no little anger and much sadness.
Sadness because the UK NSC’s next review will not start until 2018/19. So we know from the outset that, based on CRY’s 12-a-week figure, just short of 2,000 more UK citizens, all of them young, will likely have died by the time anyone takes another look. Many could have lived.
That’s shameful.
Can you imagine if 12 cyclists were killed each week on London’s roads? That would be carnage. There would, quite rightly, be outrage, a huge public outcry. So why not in this case, too?
Posted by PaulClabburn on Jul 30, 2015 in 2015, Awareness, Cardiac Risk in the Young, Dr Rupa Huq MP
A screenshot showing part of CRY’s APPG membership list.
Dr Rupa Huq, the newly elected MP for Ealing Central and Acton, has joined CRY’s All Party Parliamentary Group (APPG).
The group is made up of MPs of all political persuasions and is united by an interest in, and support for, CRY’s work.
Dr Huq said: “Too many families and young people are affected by this often undiagnosed risk and sometimes with tragic consequences. I believe we should be doing all we can to highlight the risk and to support research which is why I joined the APPG.”
Paul Clabburn said: “We’re delighted that Dr Huq has joined. Since Tom died in 2007, we’ve repeatedly asked our constituency MP, whether Labour or Conservative, if they would consider joining the group and this is the first time we’ve had a positive response.
“We were aware that Dr Huq followed Tom and Claire’s Fund on Twitter so we are very grateful that she has gone the extra step and will help to ensure CRY’s message is heard in parliament.”
You can see the full list of MPs who belong to CRY’s APPG here.
Posted by PaulClabburn on Jun 29, 2015 in 2015, Awareness, CRY London Bridges Walk, Fund-raising event
Team Tom VIII – or most of them – walking for Claire and Tom. With thanks to David Bentley for the picture.
A huge ‘thank you’ to all those who walked in memory of Tom and Claire at CRY’s annual Heart Of London Bridges Walk on Sunday, June 28.
Maybe we shouldn’t be surprised but Ellen and I were astounded by the turn out – more than 60 people took part for Team Tom VIII. It’s one of our largest-ever groups of walkers.
Team Tom VIII helped CRY achieve a record number of walkers with more than 1,800 people taking part. To put that in context, when we first took part in 2008 – only CRY’s second Bridges event – there were around 600 walkers in total.
Raising awareness is a key purpose of the walk and the growing numbers reflects that the message is spreading. Anyone who has ever walked has played a part in that.
If you also raised funds, it’s hugely appreciated. On that note a special thanks to Ann Huybrechts and former BBC colleagues of Claire’s who were sponsored to the tune of more than £1,600. A brilliant effort. If there were others who raised money that we don’t know about, please contact us.
We were also touched by those, young and a tad older, who made the effort to greet the walkers at the finish. They included Jacob, below. It’s for people like him that CRY exists, to give young people the opportunity to be screened (OK, so he’s got 13 years and 49 weeks to go before he’s eligible but we like the picture).
Sleep easy: Three-week-old Jacob supports CRY’s campaign.
To all who walked, we can but say again: ‘Thank you’.
Posted by PaulClabburn on Jun 21, 2015 in 2015, CRY London Bridges Walk
Help to prevent 12-a-week.
CRY’s ninth annual Heart of London Bridges Walk takes place in a week’s time, on Sunday, June 28.
Tomorrow, Monday, June 22, is the last day for registration but you can still turn up on the day and register at the event. Full details here.
Hope to see you there!
Posted by PaulClabburn on Jun 3, 2015 in 2015, Awareness, BBC, Claire Prosser, Life After Tom, Tom Clabburn
Life After Tom on BBC iPlayer Radio.
Claire’s BBC Radio 4 documentary, ‘Life After Tom’, is now available on BBC iPlayer Radio.
You can find it here.
The programme, written and narrated by Claire, was first broadcast in October, 2008, and describes how she navigated the first 12 months after Tom’s death.
That it is now available on demand is due to the efforts of Claire’s friend – and producer of the programme – Linda Pressly.
Having listened to it again, it seems to me to have withstood the test of time and therefore stands as a fitting tribute to Claire, both as a mother and as a journalist.
PC, June 3, 2015.
