On the eve of the anniversary of Tom’s death aged 14 from an undiagnosed heart condition, we are delighted to say that free Cardiac Risk in the Young screenings , sponsored by Tom and Claire’s Fund, will begin again in Ealing.
We are at a new venue, Trailfinders Sports Club, and the heart screenings will take place on Sunday, November 7. They are open to all aged between 14-35. If you have any questions, please contact CRY, not the club.
Paul Clabburn said: “The screenings are a vital part of Tom’s legacy and we are so pleased that they can restart after being halted by the pandemic. We are incredibly grateful to Trailfinders for making their facilities available and to all those who have continued to donate to the Fund. We couldn’t do it without you.”
Today should have been Tom’s 28th birthday. We thought it would be good to mark the occasion with some positive news.
With CRY’s screening programme temporarily on hold, we’ve decided to support a project – a database – that the charity says will take its research programme to the next level and enable it to screen even more young people in the future.
Dr Steven Cox, CRY’s Chief Executive said: “Thank you to everyone who is supporting CRY in memory of Tom and Claire. This new research database is so important and we greatly appreciate the incredible support from Tom and Claire’s Memorial Fund to enable us to take this forward.”
Steve explained that due to the rapid expansion of CRY’s research and screening programmes, the charity needs a bespoke database to allow it to develop its vital work.
He said: “This will be a cloud-based system enabling CRY to build on the success of our screening and research programmes and develop worldwide collaborations between international partners.
“This is one of the most important projects that CRY needs to invest into in order to take our research programme to the next level. The new database will have a huge impact on the cost-effectiveness of our programmes. This system will enable CRY to screen even more young people, meaning we will identify more people with cardiac conditions and save more young lives.”
The database will cost in the region of £60,000. Tom and Claire’s Fund will pay fifty per cent towards the cost or £30,000, whichever is the greater.
Like Steve, we can only say “thank you” to everyone. Without people continuing to raise money for Tom and Claire’s Fund, we couldn’t help CRY in this way. As with every other charity, CRY faces challenges because of the pandemic and so, while we can’t screen, we thought it better to do something with the funds rather than leave them in a bank account.
We will be back screening in west London as soon as conditions allow. We have dates pencilled in for next year, 2022 and 2023.
A total of 95 young people aged between 14-35 were screened by Cardiac Risk in the Young at the Florence Road surgery, Florence Road, Ealing, on Sunday, November 4.
The free screenings were sponsored by Tom and Claire’s Fund.
Ellen Clabburn said: “It’s our tenth year of sponsoring such screenings, which is a tremendous tribute to the fund-raising efforts of the local community. They’ve raised the money which enables the screenings to take place and be free at point of use. This simply wouldn’t happen without people supporting the fund and it’s hugely appreciated that they do so.
“We’d like to thank the CRY team for their dedication and professionalism and, as ever, we’re very grateful to Dr Evans and all those at Florence Road surgery for hosting the event.”
Further screenings are planned for Ealing in autumn 2020.
This year’s free CRY heart screenings for those aged 14-35 will take place on Sunday, November 3, at the Florence Road Surgery, 26 Florence Road, Ealing, London, W5 3TX. You can book here.
The screenings are sponsored by Tom and Claire’s Fund. You can read about what happens at a screening here.
Once again we are very grateful to the Florence Road Surgery for hosting the event. However, if you have any queries, please contact CRY, rather than the surgery or us. CRY’s contact details are here.
A draft “rapid review” carried out for the UK National Screening Committee has recommended no change in the current position on heart screening for young adults – ie there shouldn’t be any.
You can read the review here, where you’ll also find a feedback form. Please make your voice heard. Your comments must be made by September 7, 2019.
“It FAILS to stress that 1 in 300 people screened have a cardiac condition that can benefit from treatment or lifestyle advice.
“It FAILS to objectively evaluate the overlap between the current routine use of the ECG in the NHS / medical practice for general diagnostics and monitoring and its role in cardiac screening.
“It is unbalanced and has interpreted the evidence subjectively with the apparent intent of ‘kicking the ball into the long grass’.”
CRY would be grateful if you’d send them a copy of your submission. Email: cry@c-r-y.org.uk
CRY clinic administrator Jodie Egerton with Kavi Luchowa, a former teammate of Tom’s at Hanwell Town FC, who attended the screening.
Ninety young people were tested at this year’s Cardiac Risk in the Young heart screenings in Ealing.
The free event for 14-35 year olds, sponsored by Tom and Claire’s Fund, took place at the Florence Road surgery, Florence Road, on Sunday November 4.
Paul Clabburn said: “As ever, we’re very grateful to the CRY team for the friendly and professional way they go about their work. We also appreciate the efforts of Dr Evans and all at Florence Road for providing us with a venue for the screenings. They’ve hosted CRY every year since 2011, which is a tremendous show of support.
“A lot of people have raised money for Tom and Claire’s Fund so that the screenings can take place. We couldn’t do it without them and we cannot thank them enough.”
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