Cardiac Risk in the Young | The Tom Clabburn Memorial Fund

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Posted by PaulClabburn on Apr 4, 2018 in 2018, Awareness, Cardiac Risk in the Young, CRY London Bridges Walk

Join us for @CRY_UK Heart of London Bridges walk 2018 #12AWeek

Supporting CRY.

CRY’s 12th annual Heart of London Bridges Walk will take place on Sunday, June 24, 2018.

You can register here: https://www.c-r-y.org.uk/events/events/cry-heart-of-london-bridges-walk-2018/

We will be taking part for the 11th year and, as ever, we would love to see you there to remember Tom and Claire.

You don’t need to raise sponsorship to take part, it’s enough to walk and raise awareness of the loss of 12 young people a week to undiagnosed heart conditions.

Paul and Ellen x

Posted by PaulClabburn on Dec 12, 2017 in 2017, Awareness, Cardiac Risk in the Young, Claire Prosser, Donations, Ealing

Munsons of #Ealing donate £250 to @CRY_UK

Munsons cheque presentation, December 2017

Neo presents the cheque on behalf of Munsons to Vicky.

Munsons Coffee and Eats have donated a cheque for £250 to Tom and Claire’s fund.

The cafe, in St Mary’s Road, Ealing, have supported the fund for many years.

CRY supporter and family friend Vicky Pearson, who accepted the cheque on behalf of the fund, said: “Claire was a regular customer at Munsons, meeting friends and holding fundraising book sales.

“Munsons holds memories for many of us and to receive this donation shows what a special place it is.”

The money will contribute towards further heart screenings to be held in Ealing next year.

Posted by PaulClabburn on Nov 23, 2017 in 2017, Awareness, Cardiac Risk in the Young

When Westminster met Love Island: messages from the heart of @CRY_UK

With Ruth Cadbury, MP.

CRY’s All-Party Parliamentary Group reception at the House of Commons on Wednesday, November 22, will long stay in the memory.

Firstly, because it is always nice to hear how Tom’s friends are getting on and on this occasion it was a pleasure to catch-up with Brentford and Isleworth MP Ruth Cadbury, whose son, Joe, was a schoolmate at Little Ealing Primary School. We have known Ruth for many years and she is a long-standing supporter of CRY. It is typical of Ruth, who belongs to the all-party group, that she found the time to come to the reception and show her support.

Secondly, because, like buses, great speeches seem to come along in pairs.

CRY supporter Montana Brown with Ellen.

Love Island and CRY, I suspect, share pretty much the same target demographic. The choice of one of the show’s stars, CRY supporter Montana Brown, as a speaker was, therefore, inspired. Ms Brown spoke about the value of CRY’s latest publication, ‘A Friend’s Grief’, telling of how, aged 17, she had lost a close school friend; of her feelings of disbelief; of going into shock; of waking up in the mornings not wanting to go to school and covered from head to toe in a rash. It was raw, it was from the heart, and it was one of the most honest and courageous accounts of sudden loss that I’ve heard.

As if that wasn’t enough, CRY’s chief executive, Steve Cox, concluded by delivering an incredibly powerful speech. He was passionate about what he wanted CRY to achieve and there was more than a hint of anger when he described the manner in which CRY’s research, based as it is on the UK’s largest screening programme for young people, had been ignored by the UK’s National Screening Committee.

These were two fine speeches delivered in the heart of Westminster. It would be nice to think someone was listening.

CRY Patron Andy Scott (third left) and family with CRY founder Alison Cox (centre) and chief executive Steve Cox (far right).

Posted by PaulClabburn on Nov 13, 2017 in 2017, Awareness, Cardiac Risk in the Young

‘A Friend’s Grief’ published by @CRY_UK

Claire and I always remembered that while some folk crossed the road because they didn’t know what to say to us after Tom died, Tom’s friends – and Ellen’s too for that matter – always made a point of crossing the road to talk to us. It didn’t mean, of course, that they didn’t have their own sorrow to deal with. CRY have now bought out a new booklet ‘A Friend’s Grief.’

http://www.c-r-y.org.uk/cry-launches-new-friends-grief-booklet/

Posted by PaulClabburn on Sep 27, 2017 in 2017, Cardiac Risk in the Young, CRY screenings, Ealing

Open for booking: free November @CRY_UK heart screenings in #Ealing #London

The latest free heart screenings for 14-35 year olds sponsored by Tom and Claire’s Fund are now open for booking here.

The screenings take place on Sunday, November 5, at Florence Road Surgery, 26 Florence Road, London, W5 3TX. We are grateful to Dr Evans and the team for hosting the event.

If you have any queries, please contact CRY here, not the surgery or us.

The nearest tube is Ealing Broadway and there is a multi-storey car park close by at Ealing Broadway shopping centre. Parking in the nearby streets is usually metered.

Posted by PaulClabburn on Jul 9, 2017 in 2017, Awareness, Cardiac Risk in the Young, CRY London Bridges Walk, Fund-raising event

Ten years of crossing bridges with @CRY_UK

CRY, Bridges Walk 2017, Team Tom, July 2017

Some of Team Tom at the start of the walk.

Thank you! More than 50 people turned-out for Team Tom to mark the 10th time we have taken part in CRY’s Heart of London Bridges Walk.

This year’s walk always felt particularly significant. A decade is a long time and with the event coming before the anniversary of Tom’s death, it was redolent with memories. To see so many people make extraordinary efforts to attend, therefore, was inspiring.

CRY’s estimate at time of writing is that we were among 1,400 people who took part. Looking around Potters Fields, it was wonderful to see how many were waiting to walk.

Wonderful but troubling. A story in the papers earlier this year told of a parent who discovered their 14-year-old son dead in bed. They had never heard of CRY, never heard of cardiac screening. All the things we were saying 10 years ago.

It raises the question – has there been progress? Is it worth giving up a Sunday to slog around 10k in the heat?

We’d say ‘Yes’.

Plainly cardiac screening is still not available as of right to young people. However, CRY are screening more people than ever before, more than 23,000 last year, and their research programme is a leader in its field. The scientific case for screening appears to be gaining ground.

The walk remains a key part in CRY’s armoury, its largest public event. It is not simply the sight of people walking or the funds raised. It also raises awareness up and down the country as local media tells the stories of those taking part.

It is one battle in a long and gruelling war. Ultimately, the injustice that is 12 young people dying each week because of undiagnosed heart conditions will end. The evidence will become too strong to be ignored.

And when it does, everyone who has ever walked will have played a part:

“Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.” Margaret Mead.

Thank you for walking. It means more to us than words can say.