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Posted by on Jul 11, 2017 in 2017, Awareness, Fund-raising event

Eagles go the extra mile to raise nearly £1800 for @CRY_UK

CRY, Ealing Eagles cheque presentation, July 2017

Thom Martini, left, with Paul Clabburn

Ealing Eagles Running Club have raised nearly £1,800 for The Tom Clabburn Memorial Fund and CRY.

Club chairman Thom Martini said: “The Eagles have supported CRY for many years through their involvement in the Ealing Half Marathon and the Andrew Carter Memorial Mile. It seemed a natural progression to make Tom’s Fund our nominated charity for 2016/17 as we believe it is important that young people have the opportunity to access cardiac screening locally. “

Thom continued: “We held a series of running and social events to raise the money and we are delighted that it will be used to support such vital work. Being runners, we tend to think that we are all fit and healthy but tragically, as we’ve seen, that is not necessarily the case.”

Many of the club’s runners take part in the Ealing Half Marathon, which has again named CRY as an associated charity partner for the 2017 event in September. Members also turn out in large numbers to support the annual Andrew Carter Memorial Mile. Andrew died of an undiagnosed heart condition while taking part in the 2014 Ealing Half Marathon and his parents allow proceeds from the race to be paid into Tom’s Fund.

Tom’s dad, Paul, said: “We are honoured to have been nominated as the Ealing Eagles charity for the year. Both individually and collectively, they have been extremely supportive to us over the years and we can only thank them for yet again putting such a tremendous effort into raising money for the Fund. They are an incredibly generous group of people.”

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Posted by on Jul 9, 2017 in 2017, Awareness, Cardiac Risk in the Young, CRY London Bridges Walk, Fund-raising event

Ten years of crossing bridges with @CRY_UK

CRY, Bridges Walk 2017, Team Tom, July 2017

Some of Team Tom at the start of the walk.

Thank you! More than 50 people turned-out for Team Tom to mark the 10th time we have taken part in CRY’s Heart of London Bridges Walk.

This year’s walk always felt particularly significant. A decade is a long time and with the event coming before the anniversary of Tom’s death, it was redolent with memories. To see so many people make extraordinary efforts to attend, therefore, was inspiring.

CRY’s estimate at time of writing is that we were among 1,400 people who took part. Looking around Potters Fields, it was wonderful to see how many were waiting to walk.

Wonderful but troubling. A story in the papers earlier this year told of a parent who discovered their 14-year-old son dead in bed. They had never heard of CRY, never heard of cardiac screening. All the things we were saying 10 years ago.

It raises the question – has there been progress? Is it worth giving up a Sunday to slog around 10k in the heat?

We’d say ‘Yes’.

Plainly cardiac screening is still not available as of right to young people. However, CRY are screening more people than ever before, more than 23,000 last year, and their research programme is a leader in its field. The scientific case for screening appears to be gaining ground.

The walk remains a key part in CRY’s armoury, its largest public event. It is not simply the sight of people walking or the funds raised. It also raises awareness up and down the country as local media tells the stories of those taking part.

It is one battle in a long and gruelling war. Ultimately, the injustice that is 12 young people dying each week because of undiagnosed heart conditions will end. The evidence will become too strong to be ignored.

And when it does, everyone who has ever walked will have played a part:

“Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.” Margaret Mead.

Thank you for walking. It means more to us than words can say.

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Posted by on May 28, 2017 in 2017, Awareness, CRY London Bridges Walk

Please join us on July 9 for @CRY_UK London Bridges Walk

Tom with Claire at a BBC roadshow

Tom with Claire at a BBC roadshow

 

CRY’s 11th Heart of London Bridges Walk will be held on Sunday, July 9. We’ll be walking again to remember Tom and Claire.

Please join us if you can – it will be our 10th year of taking part and we’d love to see you.

With all the calls on people to raise money, great if you can but you don’t have to be sponsored. The most important thing is to walk. Just bring yourself and help to raise awareness.

You can register online or on the day and full details are here.

Hope to see you there.

Paul and Ellen x

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Posted by on Apr 24, 2017 in 2017, Awareness, Cardiac Risk in the Young, Fund-raising event

Hannah’s towering effort raises money for @CRY_UK

CRY Hannah Dunn Spinnacker Tower, Porstmouth, April 2017

Don’t look down! Hannah gets set.

Claire’s cousin Hannah Dunn successfully abseiled down the 170 metre Spinnaker Tower in Portsmouth on Saturday, April 22, to raise money for Tom and Claire’s Fund.

Hannah said: “Well, I did it!  The most terrifying experience was when going over the edge but once on the way it was fantastic.”

Her effort raised a total of £1406 which will be split between Tom and Claire’s Fund and St. Barnabas House hospice in Worthing.

Hannah, who says she is an ‘adrenaline junky’ after jumping from 13,000 feet over Salisbury Plain to raise money for CRY in her first skydive in 2015, says she’s now planning what challenge to take on next.

If you want to support Hannah, you can still do so here.

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Posted by on Mar 27, 2017 in 2017, Awareness, Cardiac Risk in the Young, CRY screenings

Latest #Ealing #Hanwell @CRY_UK heart screenings fully booked

CRY logo

Our latest free heart screenings for young people aged between 14-35 are now fully booked.

The screenings are taking place on Thursday, April 6, at Drayton Manor High School, Drayton Bridge Road, London, W7 1EU.

If you have booked, please make every effort to attend. If you can’t attend for any reason, please let CRY know.

If you have any queries, please contact CRY rather than the school or us. Contact details for CRY are here.

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Posted by on Nov 7, 2016 in 2016, Awareness, Cardiac Risk in the Young, CRY screenings

More than 90 screened by @CRY_UK in #Ealing heart tests

CRY Ealing screenings, Ealing, November 2017

CRY screening team members, back row left to right, Jodie Egerton, Tony Hill, Dr Keerthi Prakash, Sheila Pitt and (front) Irish Joy.

Ninety-eight young people were tested at the latest free CRY heart screenings sponsored by Tom and Claire’s Fund on Sunday, November 6.

Some were referred for further tests.

A total of £158 was also donated during the event at the Florence Road surgery, Florence Road, Ealing, and Paul Clabburn said: “We’re very grateful for the donations made on the day and, of course, to those who have raised money so that the event could take place.

“Yet again we also owe a huge debt of gratitute to the CRY team for their dedication and professionalism and to Dr Evans and his staff for hosting the event.”

More free Tom and Claire’s Fund sponsored heart screenings are planned to take place in Ealing in spring and autumn, 2017.

But if you are aged between 14-35 and want to be tested before that, you can find further information and a calendar of all CRY’s heart screenings here.

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