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Posted by on Nov 22, 2018 in 2018, Awareness, Cardiac Risk in the Young

Now that would be a surprise … @CRY_UK

CRY, Ruth Cadbury, November 2018

With Ruth Cadbury MP, centre, CRY patron Andy Scott, far left, and CRY Chief Executive, Steve Cox, far right.

CRY has a lot of unsung heroes. All over the country people raise money for free screenings and ground-breaking research; devote their time to raising awareness of the dangers of undiagnosed heart conditions in young people. They don’t make a fuss, they simply deliver.

The charity’s annual All-Party Parliamentary Group reception at the House of Commons, held this year on Wednesday, November 21, was a chance to celebrate their work.

You meet people from all walks of life; those who have lost children, siblings, parents; medics pushing scientific boundaries in the search for answers; those who support CRY because they believe losing 12 young people a week to undiagnosed heart conditions is simply wrong.

As usual, one of those attending was CRY patron Andy Scott. Year after year, the former Brentford manager, now Sporting Director at Watford, gives up his time for CRY. He’s supported our family by turning out at our screenings. He’s supported many more CRY families, directly or indirectly, by working for well over a decade to raise awareness.

This year he was at parliament while mourning the loss of a friend, Robert Rowan, Brentford Football Club’s technical director, who died of heart failure at the age of 28 earlier this month. It’s a tribute to Andy’s commitment to CRY that he chose to attend in such circumstances. On the other hand, it’s not surprising.

It was also noticeable how many MPs at the reception were there because they had a direct connection to a CRY family. One such was our own Brentford and Isleworth MP, Ruth Cadbury. Her son, Joe, was a friend of Tom’s, dating back to their time together at Little Ealing Primary School. Ruth has been a long-standing supporter of CRY and, again, it’s not surprising she chose to attend.

Within the next year, the National Screening Committee are due to consider the merits of a UK-wide screening programme for young people. Quite rightly, they’ll put great weight on the scientific evidence although, as CRY’s chief executive, Steve Cox, pointed out, they might also consider the human cost. It’s not just statistics we’re dealing with, it’s the impact of young lives lost.

The NSC’s last review in 2015 left me with more questions than answers. Will it be different this time? Now that really would be surprising.

CRY, Parly reception, Sharma, Jennings, November 2018

CRY’s Consultant Cardiologist, Professor Sanjay Sharma, with CRY patron and Tottenham Hotspur legend, Pat Jennings.

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Posted by on Oct 5, 2018 in 2018, Awareness, Cardiac Risk in the Young, CRY screenings

Tom’s anniversary and @CRY_UK #Ealing screenings #12aweek

Tom's

It seems fitting, given today is the anniversary of Tom’s death, that we’ve learned CRY’s Ealing screenings on Sunday, November 4, are now fully booked.

The free screenings are held in memory of Tom and Claire. I hope the 113 people who will have their hearts tested leave with nothing more than reassurance. I also hope they all turn up – or let CRY know in advance if they can’t – as the screenings have a long waiting list and someone can take their place.

There is plainly a huge demand for such screenings. That they are free is due to all those people who have raised the money which has allowed Tom and Claire’s Fund to sponsor heart testing for more than 2,500 young people since 2009.

But it’s not a bottomless pot. The money is running out and, unless we raise more, the screenings scheduled for 2020 could be our last. So if you’re thinking of raising money for charity, please consider Tom and Claire’s Fund.

NB: Our Fund, like all CRY family funds, is administered by Cardiac Risk in the Young, a registered charity. Money raised by the Fund can only be used to support screenings, research or the purchase of medical equipment by CRY.

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Posted by on Oct 1, 2018 in 2018, Awareness, Cardiac Risk in the Young, CRY screenings, Ealing

Book now for free @CRY_UK #Ealing heart screenings for young people #London

CRY October 2018

This year’s free CRY heart screenings for those aged 14-35 will take place on Sunday, November 4, at the Florence Road Surgery, 26 Florence Road, Ealing, London, W5 3TX. You can book here.

The screenings are sponsored by Tom and Claire’s Fund. You can read about what happens at a screening here.

Once again we are very grateful to the Florence Road Surgery for hosting the event. However, if you have any queries, please contact CRY, rather than the surgery or us. CRY’s contact details are here.

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Posted by on Sep 4, 2018 in 2018, Awareness, Cardiac Risk in the Young, CRY screenings, Fund-raising event, The Andrew Carter Memorial Mile

Andrew Carter mile raises more than £700 for @CRY_UK #Ealing

Andrew Carter Memorial Mile 2018

About 60 runners took part in the Andrew Carter Memorial Mile on Saturday, September 1, raising more than £700 for Tom and Claire’s Fund and Cardiac Risk in the Young.

The event is held in memory of Andrew, who collapsed from a cardiac arrest during the Ealing Half Marathon in 2014. He died on October 1, 2014. The money raised supports heart screenings in Ealing sponsored by Tom and Claire’s Fund.

Sandra Courtney, one of the Ealing Half Marathon organisers, said: “It was a lovely day and it was great to raise such a large total again.”

Paul Clabburn said: “We are very grateful to all those who ran and to Andrew’s parents. Each year, those who take part play a significant role in ensuring that free CRY screenings can continue.”

This year’s screenings are due to take place in November.

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Posted by on Aug 28, 2018 in 2018, Awareness, Cardiac Risk in the Young, Ealing, Fund-raising event, The Andrew Carter Memorial Mile, Tom Clabburn

Raise money for @CRY_UK in Ealing on Saturday, September 1 #12aweek

The 2018 Andrew Carter Memorial Mile will take place in Lammas Park, Ealing, this coming Saturday to raise money for The Tom Clabburn Memorial Fund and Cardiac Risk in the Young.

It’s free of charge and you can run, jog or walk the course. You can register here.

The memorial mile is organised by Ealing Half Marathon and follows the death of Andrew Carter. Andrew took part in the event in 2014 but collapsed shortly before the end of the race from a cardiac arrest. He died on October 1, 2014.

The event’s organisers said: “Join us and run this great course, it is the perfect way to start a Saturday morning and to raise funds for a worthy cause. All we ask is that all runners make a donation to the collection tin on the day or donate online here to The Tom Clabburn Fund.

 

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Posted by on Jun 24, 2018 in 2018, Awareness, Cardiac Risk in the Young, CRY London Bridges Walk

Thank you for walking the Bridges for @CRY_UK #12aweek

Bridges Walk 2018

Some of Team Tom.

More than 50 people walked in memory of Tom and Claire at Cardiac Risk in the Young’s annual Heart of London Bridges Walk on Sunday, June 24.

It’s the 11th time we have walked and, yet again, we’re hugely grateful for the fantastic turn-out. We’re very lucky to have such support.

As CRY’s Chief Executive, Steve Cox, explained in a brief speech, one of the most important steps in CRY’s campaign to prevent Young Sudden Cardiac Deaths (YSCD) took place earlier this month.

For the first time, causes of death including SADS, ARVC and Short QT have been recognised by the World Health Organisation (WHO). You can read more here.

In Steve’s words: “We believe that once this new code is fully implemented it will finally be possible to establish that these cardiac conditions are one of the most common causes of death in young people and much more should be done by our government to prevent these tragedies.”

That could mean the eventual implementation of a national strategy.

Meanwhile, 12 young people aged 14-35 are dying every week.

CRY can’t campaign without your support so, whether you walked this year or in the past, thank you.

Paul and Ellen x

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