Awareness | The Tom Clabburn Memorial Fund

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Posted by PaulClabburn on Jun 29, 2020 in 2020, Awareness, Cardiac Risk in the Young, CRY London Bridges Walk

Team Tom XIII walks on for @CRY_UK

Gathering for the walk.

It’s a sobering thought that more than eight thousand 14 to 35-year olds will have died since we first walked with CRY in 2008 to raise awareness of undiagnosed heart conditions in young people and to remember Tom.

This year’s CRY Heart of London Bridges Walk had to be cancelled because of coronavirus and so, like many families across the UK, we held our own socially distanced walk in west London.

Remembering Tom and all those like him at the two-minute silence.

Despite the awful situation the country currently finds itself in, we cannot lose sight of the need to ensure that the 12 young people who CRY say die every week from undiagnosed heart conditions are given the chance of a future.

We’re grateful to those who knew Tom for giving up their time and walking, more than a decade after his passing. It’s something we hugely appreciate. I very much hope we can all gather together again in London for a full-length bridges walk next year.

Another bridge crossed.

Stay safe,

Paul and Ellen x

Posted by PaulClabburn on Nov 18, 2019 in 2019, Awareness, Cardiac Risk in the Young, Ealing, Fund-raising event

Fundraisers Jules and Clive take a long and winding road for @CRY_UK

Clive and Juliet.

Cycling four hundred kilometres in five days in temperatures higher than thirty degrees centigrade is the challenge Clive and Juliet Matthews have set themselves as they raise money for Tom and Claire’s Fund.

The pair, from Ealing, are aiming to cycle from Mumbai to Goa between November 30th and December 4th, 2019. You can support them here.

“We will be thinking about Claire and Tom every day that we’re training and cycling,” said Jules, who continues to recover from injuries after being hit by a car in 2015. “I am still very nervous when crossing a road so this is a nerve wracking challenge for me, apart from the fact that my fitness is seriously lacking!”

The couple, who are covering all the costs themselves, will be cycling about seven hours a day. The hot and hilly route will take them south through India.

Clive, who has gone through rigorous checks that his heart is strong enough for the testing conditions, having had a few issues of his own in the past, said: “I love challenges, and this couldn’t be for a better cause. I just hope I haven’t bitten off more than I can chew in the sub-continent.”

Paul Clabburn said: “It’s not the first time Jules and Clive have helped to raise money for the Fund and we’ve extremely grateful for their efforts. They have been great supporters of our family and I hope this latest challenge is a wonderful experience.”

Posted by PaulClabburn on Nov 4, 2019 in 2019, Awareness, Cardiac Risk in the Young, CRY screenings, Ealing

More than 90 young people have free @CRY_UK heart tests in #Ealing

Ellen with members of the CRY screening team.

A total of 95 young people aged between 14-35 were screened by Cardiac Risk in the Young at the Florence Road surgery, Florence Road, Ealing, on Sunday, November 4.

The free screenings were sponsored by Tom and Claire’s Fund.

Ellen Clabburn said: “It’s our tenth year of sponsoring such screenings, which is a tremendous tribute to the fund-raising efforts of the local community. They’ve raised the money which enables the screenings to take place and be free at point of use. This simply wouldn’t happen without people supporting the fund and it’s hugely appreciated that they do so.

“We’d like to thank the CRY team for their dedication and professionalism and, as ever, we’re very grateful to Dr Evans and all those at Florence Road surgery for hosting the event.”

Further screenings are planned for Ealing in autumn 2020.

Posted by PaulClabburn on Sep 8, 2019 in 2019, Awareness, Cardiac Risk in the Young, The Andrew Carter Memorial Mile

Runners raise hundreds of pounds for @CRY_UK #Ealing #London

Andrew Carter Memorial Mile runners for CRY

Andrew Carter’s parents join runners at the start of the 2019 memorial mile.

More than £400 was raised by runners taking part in the 2019 Andrew Carter Memorial Mile in Lammas Park, Ealing, on Saturday, September 7.

The event, organised by Ealing Half Marathon, raises money for The Tom Clabburn Memorial Fund and Cardiac Risk in the Young. It’s held annually in memory of Andrew Carter, who died aged 33 after suffering a cardiac arrest during the 2014 Ealing Half Marathon.

Andrew’s parents attended the race and donated a further £1,000, saying: “Our sincere thanks to everyone who ran today in memory of our beloved Andrew, five years on.”

Ellen Clabburn said: “It was a privilege to take part in memory of Andrew and to raise money for CRY. People ran, jogged and walked – I admit to being more jogger than runner.

“It was lovely to meet Andrew’s parents at the end of the race. They are great supporters of CRY and without their help, and that of all those who took part, free heart screenings for young people simply wouldn’t happen in Ealing.”

Details of the next screening, in November, will appear on this site in the week of September 9.

Donations can be made here.

Posted by PaulClabburn on Sep 5, 2019 in 2019, Awareness, Ealing, The Andrew Carter Memorial Mile

Run, jog or walk this Saturday and raise money for @CRY_UK #Ealing #London

Andrew’s parents join runners at the start of last year’s race.

Andrew Carter died after suffering cardiac arrest during the 2014 Ealing Half Marathon. He was 33-years-old.

Every year since, Ealing Half Marathon have held the Andrew Carter Memorial Mile in Lammas Park, Ealing, to raise money for The Tom Clabburn Memorial Fund and Cardiac Risk in the Young. You can register free of charge here.

The organisers say you can run, jog or walk the course and that it’s suitable for all abilities and ages.

They add: “Come and join us and run this great course, it is the perfect way to start a Saturday morning and raise funds for a worthy cause. All we ask is that all runners make a donation to the collection tin on the day or donate online here to the Tom Clabburn Fund.”

Posted by PaulClabburn on Jul 31, 2019 in 2019, Awareness, Cardiac Risk in the Young, CRY screenings

Make your voice heard as review says “no” to heart screening for the young @CRY_UK

Help to prevent 12-a-week.

A draft “rapid review” carried out for the UK National Screening Committee has recommended no change in the current position on heart screening for young adults – ie there shouldn’t be any.

You can read the review here, where you’ll also find a feedback form. Please make your voice heard. Your comments must be made by September 7, 2019.

CRY’s initial response by Chief Executive Steve Cox included: “The NSC consultation document FAILS to demonstrate the impact young sudden cardiac deaths have on our society.

“It FAILS to stress that 1 in 300 people screened have a cardiac condition that can benefit from treatment or lifestyle advice.

“It FAILS to objectively evaluate the overlap between the current routine use of the ECG in the NHS / medical practice for general diagnostics and monitoring and its role in cardiac screening.

“It is unbalanced and has interpreted the evidence subjectively with the apparent intent of ‘kicking the ball into the long grass’.”

CRY would be grateful if you’d send them a copy of your submission. Email: cry@c-r-y.org.uk

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