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Posted by on Jun 29, 2020 in 2020, Awareness, Cardiac Risk in the Young, CRY London Bridges Walk

Team Tom XIII walks on for @CRY_UK

CRY Walk 2020 1 gathering

Gathering for the walk.

It’s a sobering thought that more than eight thousand 14 to 35-year olds will have died since we first walked with CRY in 2008 to raise awareness of undiagnosed heart conditions in young people and to remember Tom.

This year’s CRY Heart of London Bridges Walk had to be cancelled because of coronavirus and so, like many families across the UK, we held our own socially distanced walk in west London.

CRY Walk 2020 2 silence

Remembering Tom and all those like him at the two-minute silence.

Despite the awful situation the country currently finds itself in, we cannot lose sight of the need to ensure that the 12 young people who CRY say die every week from undiagnosed heart conditions are given the chance of a future.

We’re grateful to those who knew Tom for giving up their time and walking, more than a decade after his passing. It’s something we hugely appreciate. I very much hope we can all gather together again in London for a full-length bridges walk next year.

CRY Walk 3 en route

Another bridge crossed.

 

Stay safe,

Paul and Ellen x

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Posted by on Jun 25, 2020 in 2020, Cardiac Risk in the Young, CRY London Bridges Walk

This year’s @CRY_UK London Bridges walk

CRY 2020 Tom Tshirt

As you no doubt know, this year’s CRY Heart of London Bridges Walk, due to take place this coming Sunday, June 28, has been cancelled.

However, if you want to leave a message and/or photograph of those you would have walked in memory of, you can do so on CRY’s digital message wall here.

There’s also a link to further information on what CRY will be doing on the day – including a two-minute silence – here.

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Posted by on Jun 8, 2020 in 2020, Cardiac Risk in the Young, Donations

Thank you for raising more than £200k for @CRY_UK

It’s been far too long since we last posted but we’re thrilled to be able to say that the latest financial statement from CRY shows Tom and Claire’s Fund has raised more than £204,000 since launch.

That’s entirely down to you, everyone who has raised money over the years, even during lockdown. Thank you.

Because of your generosity the Fund has:

  • Paid for more than 2,800 free screenings of young people aged 14-35 since June, 2009.
  • Donated £10,000 to CRY’s research.
  • Bought an echocardiogram machine for CRY.

We don’t believe in sitting on the money that you’ve raised so we’ll be talking to CRY about where it can be most usefully spent in the coming weeks and months.

Separately, you‘ll probably know that CRY’s annual Heart of London Bridges Walk, due to be held on June 28, has been cancelled this year. Instead, there’ll be a virtual event and we’ll keep you posted on what we’ll be doing.

Finally, you’ll also probably know that CRY are not currently holding screenings and that many of their medical teams are involved in combatting coronavirus.

Our next free Ealing heart tests are planned for November so we’ll keep our fingers crossed that they are able to take place. Obviously, we’ll be guided by CRY and the doctors at the surgery where they’re held.

Keep well and keep safe,

Paul and Ellen x

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Posted by on Nov 18, 2019 in 2019, Awareness, Cardiac Risk in the Young, Ealing, Fund-raising event

Fundraisers Jules and Clive take a long and winding road for @CRY_UK

Clive and Juliet.

Cycling four hundred kilometres in five days in temperatures higher than thirty degrees centigrade is the challenge Clive and Juliet Matthews have set themselves as they raise money for Tom and Claire’s Fund.

The pair, from Ealing, are aiming to cycle from Mumbai to Goa between November 30th and December 4th, 2019. You can support them here.

“We will be thinking about Claire and Tom every day that we’re training and cycling,” said Jules, who continues to recover from injuries after being hit by a car in 2015. “I am still very nervous when crossing a road so this is a nerve wracking challenge for me, apart from the fact that my fitness is seriously lacking!”

The couple, who are covering all the costs themselves, will be cycling about seven hours a day. The hot and hilly route will take them south through India.

Clive, who has gone through rigorous checks that his heart is strong enough for the testing conditions, having had a few issues of his own in the past, said: “I love challenges, and this couldn’t be for a better cause. I just hope I haven’t bitten off more than I can chew in the sub-continent.”

Paul Clabburn said: “It’s not the first time Jules and Clive have helped to raise money for the Fund and we’ve extremely grateful for their efforts. They have been great supporters of our family and I hope this latest challenge is a wonderful experience.”

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Posted by on Nov 4, 2019 in 2019, Awareness, Cardiac Risk in the Young, CRY screenings, Ealing

More than 90 young people have free @CRY_UK heart tests in #Ealing

CRY screening Nov 2019

Ellen with members of the CRY screening team.

A total of 95 young people aged between 14-35 were screened by Cardiac Risk in the Young at the Florence Road surgery, Florence Road, Ealing, on Sunday, November 4.

The free screenings were sponsored by Tom and Claire’s Fund.

Ellen Clabburn said: “It’s our tenth year of sponsoring such screenings, which is a tremendous tribute to the fund-raising efforts of the local community. They’ve raised the money which enables the screenings to take place and be free at point of use. This simply wouldn’t happen without people supporting the fund and it’s hugely appreciated that they do so.

“We’d like to thank the CRY team for their dedication and professionalism and, as ever, we’re very grateful to Dr Evans and all those at Florence Road surgery for hosting the event.”

Further screenings are planned for Ealing in autumn 2020.

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