PaulClabburn

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Posted by PaulClabburn on Apr 21, 2019 in 2019, Cardiac Risk in the Young, Fund-raising event

Isa and Matthew’s marathon London effort for @CRY_UK

Isa and Matthew Turner (mother and son) are running the London Marathon on Sunday April 28 in memory of Claire and Tom.

They’ll be raising funds for CRY’s core programmes and also raising awareness of the charity’s screening programme.

It’s a first marathon for each of them and so will be tough but Matthew may hold a slight advantage, being 19 and a rower while Isa is 51 and recovering from a foot injury!

She said: “For the last few years I have been helping out at the CRY reception centre after the marathon so I really should know better. This is a bonkers idea! But it feels too important not to do it. I will run every step of the way with Tom and Claire in my heart.”

Matthew added: “CRY do such amazing work and I am delighted to be supporting them while running in memory of Tom and Claire. All the pain will be worth it for the huge impact the charity can achieve with the money raised.”

Ellen Clabburn said: “We’re very proud of what they are doing. It will be a brilliant achievement. We know Isa’s been struggling with her injury but we also know how determined they both are.”

You can support them here and if you are going to the event, please give them a big shout on the day.

Posted by PaulClabburn on Nov 26, 2018 in 2018, Awareness, Cardiac Risk in the Young, Donations, Ealing

Munson’s raises hundreds of pounds for @CRY_UK #Ealing

Left to right: Alice, Neo, Josie and Vicky.

A cheque for £250 has been donated to Tom and Claire’s Fund and @CRY_UK by Munson’s Coffee and Eats on St Mary’s Road, South Ealing.

Munson’s have supported the fund for many years. Claire was a regular customer and her memory remains strong.

Vicky Pearson, a CRY supporter and family friend who accepted the cheque on behalf of the fund, said “We very much appreciate the ongoing support of Mario and the baristas and this donation will contribute towards further heart screenings in Ealing.

“Munson’s holds a special place in our hearts and in the community.”

Posted by PaulClabburn on Nov 22, 2018 in 2018, Awareness, Cardiac Risk in the Young

Now that would be a surprise … @CRY_UK

With Ruth Cadbury MP, centre, CRY patron Andy Scott, far left, and CRY Chief Executive, Steve Cox, far right.

CRY has a lot of unsung heroes. All over the country people raise money for free screenings and ground-breaking research; devote their time to raising awareness of the dangers of undiagnosed heart conditions in young people. They don’t make a fuss, they simply deliver.

The charity’s annual All-Party Parliamentary Group reception at the House of Commons, held this year on Wednesday, November 21, was a chance to celebrate their work.

You meet people from all walks of life; those who have lost children, siblings, parents; medics pushing scientific boundaries in the search for answers; those who support CRY because they believe losing 12 young people a week to undiagnosed heart conditions is simply wrong.

As usual, one of those attending was CRY patron Andy Scott. Year after year, the former Brentford manager, now Sporting Director at Watford, gives up his time for CRY. He’s supported our family by turning out at our screenings. He’s supported many more CRY families, directly or indirectly, by working for well over a decade to raise awareness.

This year he was at parliament while mourning the loss of a friend, Robert Rowan, Brentford Football Club’s technical director, who died of heart failure at the age of 28 earlier this month. It’s a tribute to Andy’s commitment to CRY that he chose to attend in such circumstances. On the other hand, it’s not surprising.

It was also noticeable how many MPs at the reception were there because they had a direct connection to a CRY family. One such was our own Brentford and Isleworth MP, Ruth Cadbury. Her son, Joe, was a friend of Tom’s, dating back to their time together at Little Ealing Primary School. Ruth has been a long-standing supporter of CRY and, again, it’s not surprising she chose to attend.

Within the next year, the National Screening Committee are due to consider the merits of a UK-wide screening programme for young people. Quite rightly, they’ll put great weight on the scientific evidence although, as CRY’s chief executive, Steve Cox, pointed out, they might also consider the human cost. It’s not just statistics we’re dealing with, it’s the impact of young lives lost.

The NSC’s last review in 2015 left me with more questions than answers. Will it be different this time? Now that really would be surprising.

CRY, Parly reception, Sharma, Jennings, November 2018

CRY’s Consultant Cardiologist, Professor Sanjay Sharma, with CRY patron and Tottenham Hotspur legend, Pat Jennings.

Posted by PaulClabburn on Nov 5, 2018 in 2018, Cardiac Risk in the Young, CRY screenings

Ninety screened by @CRY_UK in #Ealing

CRY clinic administrator Jodie Egerton with Kavi Luchowa, a former teammate of Tom’s at Hanwell Town FC, who attended the screening.

Ninety young people were tested at this year’s Cardiac Risk in the Young heart screenings in Ealing.

The free event for 14-35 year olds, sponsored by Tom and Claire’s Fund, took place at the Florence Road surgery, Florence Road, on Sunday November 4.

Paul Clabburn said: “As ever, we’re very grateful to the CRY team for the friendly and professional way they go about their work. We also appreciate the efforts of Dr Evans and all at Florence Road for providing us with a venue for the screenings. They’ve hosted CRY every year since 2011, which is a tremendous show of support.

“A lot of people have raised money for Tom and Claire’s Fund so that the screenings can take place. We couldn’t do it without them and we cannot thank them enough.”