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Posted by on Nov 22, 2018 in 2018, Awareness, Cardiac Risk in the Young

Now that would be a surprise … @CRY_UK

CRY, Ruth Cadbury, November 2018

With Ruth Cadbury MP, centre, CRY patron Andy Scott, far left, and CRY Chief Executive, Steve Cox, far right.

CRY has a lot of unsung heroes. All over the country people raise money for free screenings and ground-breaking research; devote their time to raising awareness of the dangers of undiagnosed heart conditions in young people. They don’t make a fuss, they simply deliver.

The charity’s annual All-Party Parliamentary Group reception at the House of Commons, held this year on Wednesday, November 21, was a chance to celebrate their work.

You meet people from all walks of life; those who have lost children, siblings, parents; medics pushing scientific boundaries in the search for answers; those who support CRY because they believe losing 12 young people a week to undiagnosed heart conditions is simply wrong.

As usual, one of those attending was CRY patron Andy Scott. Year after year, the former Brentford manager, now Sporting Director at Watford, gives up his time for CRY. He’s supported our family by turning out at our screenings. He’s supported many more CRY families, directly or indirectly, by working for well over a decade to raise awareness.

This year he was at parliament while mourning the loss of a friend, Robert Rowan, Brentford Football Club’s technical director, who died of heart failure at the age of 28 earlier this month. It’s a tribute to Andy’s commitment to CRY that he chose to attend in such circumstances. On the other hand, it’s not surprising.

It was also noticeable how many MPs at the reception were there because they had a direct connection to a CRY family. One such was our own Brentford and Isleworth MP, Ruth Cadbury. Her son, Joe, was a friend of Tom’s, dating back to their time together at Little Ealing Primary School. Ruth has been a long-standing supporter of CRY and, again, it’s not surprising she chose to attend.

Within the next year, the National Screening Committee are due to consider the merits of a UK-wide screening programme for young people. Quite rightly, they’ll put great weight on the scientific evidence although, as CRY’s chief executive, Steve Cox, pointed out, they might also consider the human cost. It’s not just statistics we’re dealing with, it’s the impact of young lives lost.

The NSC’s last review in 2015 left me with more questions than answers. Will it be different this time? Now that really would be surprising.

CRY, Parly reception, Sharma, Jennings, November 2018

CRY’s Consultant Cardiologist, Professor Sanjay Sharma, with CRY patron and Tottenham Hotspur legend, Pat Jennings.

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Posted by on Nov 5, 2018 in 2018, Cardiac Risk in the Young, CRY screenings

Ninety screened by @CRY_UK in #Ealing

CRY, Ealing screening, November 2018

CRY clinic administrator Jodie Egerton with Kavi Luchowa, a former teammate of Tom’s at Hanwell Town FC, who attended the screening.

Ninety young people were tested at this year’s Cardiac Risk in the Young heart screenings in Ealing.

The free event for 14-35 year olds, sponsored by Tom and Claire’s Fund, took place at the Florence Road surgery, Florence Road, on Sunday November 4.

Paul Clabburn said: “As ever, we’re very grateful to the CRY team for the friendly and professional way they go about their work. We also appreciate the efforts of Dr Evans and all at Florence Road for providing us with a venue for the screenings. They’ve hosted CRY every year since 2011, which is a tremendous show of support.

“A lot of people have raised money for Tom and Claire’s Fund so that the screenings can take place. We couldn’t do it without them and we cannot thank them enough.”

CRY, Ealing screening, November 2018

Members of the CRY team at Ealing.

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Posted by on Oct 5, 2018 in 2018, Awareness, Cardiac Risk in the Young, CRY screenings

Tom’s anniversary and @CRY_UK #Ealing screenings #12aweek

Tom's

It seems fitting, given today is the anniversary of Tom’s death, that we’ve learned CRY’s Ealing screenings on Sunday, November 4, are now fully booked.

The free screenings are held in memory of Tom and Claire. I hope the 113 people who will have their hearts tested leave with nothing more than reassurance. I also hope they all turn up – or let CRY know in advance if they can’t – as the screenings have a long waiting list and someone can take their place.

There is plainly a huge demand for such screenings. That they are free is due to all those people who have raised the money which has allowed Tom and Claire’s Fund to sponsor heart testing for more than 2,500 young people since 2009.

But it’s not a bottomless pot. The money is running out and, unless we raise more, the screenings scheduled for 2020 could be our last. So if you’re thinking of raising money for charity, please consider Tom and Claire’s Fund.

NB: Our Fund, like all CRY family funds, is administered by Cardiac Risk in the Young, a registered charity. Money raised by the Fund can only be used to support screenings, research or the purchase of medical equipment by CRY.

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Posted by on Oct 1, 2018 in 2018, Awareness, Cardiac Risk in the Young, CRY screenings, Ealing

Book now for free @CRY_UK #Ealing heart screenings for young people #London

CRY October 2018

This year’s free CRY heart screenings for those aged 14-35 will take place on Sunday, November 4, at the Florence Road Surgery, 26 Florence Road, Ealing, London, W5 3TX. You can book here.

The screenings are sponsored by Tom and Claire’s Fund. You can read about what happens at a screening here.

Once again we are very grateful to the Florence Road Surgery for hosting the event. However, if you have any queries, please contact CRY, rather than the surgery or us. CRY’s contact details are here.

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