CRY screenings | The Tom Clabburn Memorial Fund

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Posted by PaulClabburn on Nov 1, 2022 in 2022, Cardiac Risk in the Young, CRY screenings, Donations, Tom Clabburn, Trailfinders Sports CLub

Screenings and donating to @CRY_UK

This year’s free CRY heart screenings for young people sponsored by Tom and Claire’s Fund were fully booked within 90 minutes.

We didn’t even have time to publicise the event, to be held later this month at Trailfinders in Ealing, before all slots had gone.

If you missed out, or know someone who did, you can complete CRY’s “Screening Interest Form” here. We also plan to hold more screenings in February 2023. Details will appear on this site in December.

The speed at which slots fill shows the strength of demand. It’s not just our screenings, it’s pretty much all CRY family screenings.

And any family screening is only free at point of use because of those who have donated. We’re very grateful to anyone who has ever done so, it’s only through your generosity that the Ealing screenings continue.

When we set out fundraising for CRY many years ago, the most efficient way to donate was via Justgiving. Now, with the improvements to CRY’s website, that’s changed and it’s better to do so here on Tom and Claire’s CRY memorial page. We will therefore be closing our Justgiving page at the end of the year.

Posted by PaulClabburn on Sep 12, 2022 in 2022, Awareness, Cardiac Risk in the Young, CRY screenings, The Andrew Carter Memorial Mile

Andrew Carter Memorial Mile raises hundreds of pounds for @CRY_UK

Runners at the start of the Andrew Carter Memorial mile.

The sun shone as runners taking part in the annual Andrew Carter Memorial Mile raised more than £425 for Tom and Claire’s Fund and Cardiac Risk in the Young.

The run is held annually in memory of Andrew Carter, who died aged 33 after suffering a cardiac arrest during the 2014 Ealing Half Marathon. The money raised supports heart screenings in Ealing sponsored by Tom and Claire’s Fund.

Sandra Courtney, one of the Ealing Half Marathon organisers, said: “Thanks to all the runners, joggers, walkers and volunteers who supported Ealing Half Marathon’s Andrew Carter Memorial Mile this September. Once again we had a beautiful morning in Lammas Park. We were joined by Andrew’s family and friends as well as others who wanted to take part.”

Paul Clabburn said: “We really appreciate that year after year people run in Andrew’s memory to raise money for CRY. We are also extremely grateful to Andrew’s parents for their ongoing commitment to the charity. We will hold more free heart screenings for young people in Ealing in November and we can only do so because of the efforts of all those taking part in events such as these.”

Posted by PaulClabburn on Nov 25, 2021 in 2021, Cardiac Risk in the Young, CRY screenings

Why we’re donating £20k to help fund more research doctors for @CRY_UK

CRY St George's launch event — *The ECG bought in 2016*.

Tom and Claire’s Fund raises money primarily to support free heart screening for young people. But we can’t hold screenings if there aren’t enough doctors to carry out the tests. Nor can any other CRY family.

Therefore, after discussions with CRY, we have decided to donate £20,000 towards funding the research doctors who review the ECG results of every young person tested. It’s not the first time we’re supported CRY’s research programme. Back in 2016 we bought an echocardiogram and made a donation.

We want CRY to be able to carry out as many screenings as possible where-ever they are needed in the UK and so making the donation with the money you have raised feels the right thing to do. A huge backlog has built up after the pandemic halted testing.

CRY’s chief Executive, Dr Steven Cox explains more:

“Thank you to all the supporters of Tom and Claire’s memorial fund for once again making a fantastic donation to CRY’s research programme.

“It is great news that CRY’s screening programme has restarted, and we are so pleased we have been able to hold a screening in memory of Tom and Claire at the Olympic Pavilion at Trailfinders Sports Club in Vallis Way earlier this month.

“Whilst it is brilliant to see young people being tested again, one of our most pressing challenges as a charity is to re-establish the CRY medical team after the massive impact Covid has had on our fundraising over the last 18 months.

“Funding research at CRY means funding the CRY research doctors which have the key role in the screening programme, evaluating the symptoms and reviewing the ECGs of every young person we test. Quite simply, the more doctors we are able to fund, the more young people we can screen. We urgently need to appoint more doctors so we can start to respond to the incredible demand we have for screening, with more than 50,000 young people now on a waiting list waiting to be tested.

“This support for research in memory of Tom and Claire has meant we can start the process of recruiting more doctors to get the screening programme back on track and help to save many more young lives. Thank you for all your support.”

Posted by PaulClabburn on Nov 9, 2021 in 2021, Cardiac Risk in the Young, CRY screenings, Ealing

More than 80 young people have @CRY_UK heart screenings in #Ealing

CRY screening 2021 — Left to right: Ellen with Trailfinders Operations Manager Reuben Hill, Trailfinders youth rugby chair Phil Regan and members of the CRY screening team.

More than 80 young people had their hearts tested by CRY on Sunday at the first Tom and Claire’s Fund free screenings since 2019.

CRY had to halt all screenings during lockdown and has only recently restarted. Numbers attending were limited because of COVID restrictions but CRY were able to screen 83 people aged between 14-35. Five people were referred for further tests.

The event took place at a new location for us, the Olympic Pavilion at Trailfinders Sports Club in Vallis Way, Ealing.

Paul Clabburn said: “We really appreciate the effort Trailfinders put into hosting the event. Operations manager Reuben Hill was instrumental in making the day happen, from initially showing us around the facilities to making sure that everything was in order on the day. Trailfinders are a community focussed club and we hope this will be the first of many screening events we hold with them.

“We are also extremely grateful to the brilliant CRY team who were as friendly and professional as ever and managed to screen far more people than we expected. We also want to thank anyone who has donated to our Fund. None of this could happen without people putting their hands in their pockets.”

CRY team members in the Olympic Pavilion. — Members of the CRY team inside Trailfinders Olympic Pavilion.

Posted by PaulClabburn on Oct 4, 2021 in 2021, CRY screenings, Trailfinders Sports CLub

Free @CRY_UK heart screenings for young people to resume in #Ealing

On the eve of the anniversary of Tom’s death aged 14 from an undiagnosed heart condition, we are delighted to say that free Cardiac Risk in the Young screenings , sponsored by Tom and Claire’s Fund, will begin again in Ealing.

You can register here: https://www.testmyheart.org.uk/

We are at a new venue, Trailfinders Sports Club, and the heart screenings will take place on Sunday, November 7. They are open to all aged between 14-35. If you have any questions, please contact CRY, not the club.

Paul Clabburn said: “The screenings are a vital part of Tom’s legacy and we are so pleased that they can restart after being halted by the pandemic. We are incredibly grateful to Trailfinders for making their facilities available and to all those who have continued to donate to the Fund. We couldn’t do it without you.”

Posted by PaulClabburn on Nov 27, 2020 in 2020, Cardiac Risk in the Young, CRY screenings, Donations

Tom’s birthday present for @CRY_UK

Today should have been Tom’s 28th birthday. We thought it would be good to mark the occasion with some positive news.

With CRY’s screening programme temporarily on hold, we’ve decided to support a project – a database – that the charity says will take its research programme to the next level and enable it to screen even more young people in the future.

Dr Steven Cox, CRY’s Chief Executive said: “Thank you to everyone who is supporting CRY in memory of Tom and Claire. This new research database is so important and we greatly appreciate the incredible support from Tom and Claire’s Memorial Fund to enable us to take this forward.”

Steve explained that due to the rapid expansion of CRY’s research and screening programmes, the charity needs a bespoke database to allow it to develop its vital work.

He said: “This will be a cloud-based system enabling CRY to build on the success of our screening and research programmes and develop worldwide collaborations between international partners.

“This is one of the most important projects that CRY needs to invest into in order to take our research programme to the next level. The new database will have a huge impact on the cost-effectiveness of our programmes. This system will enable CRY to screen even more young people, meaning we will identify more people with cardiac conditions and save more young lives.”

The database will cost in the region of £60,000. Tom and Claire’s Fund will pay fifty per cent towards the cost or £30,000, whichever is the greater.

Like Steve, we can only say “thank you” to everyone. Without people continuing to raise money for Tom and Claire’s Fund, we couldn’t help CRY in this way. As with every other charity, CRY faces challenges because of the pandemic and so, while we can’t screen, we thought it better to do something with the funds rather than leave them in a bank account.

We will be back screening in west London as soon as conditions allow. We have dates pencilled in for next year, 2022 and 2023.

Thanks again and keep safe.

Paul and Ellen x

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