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Posted by on Dec 12, 2017 in 2017, Awareness, Cardiac Risk in the Young, Claire Prosser, Donations, Ealing

Munsons of #Ealing donate £250 to @CRY_UK

Munsons cheque presentation, December 2017

Neo presents the cheque on behalf of Munsons to Vicky.

Munsons Coffee and Eats have donated a cheque for £250 to Tom and  Claire’s fund.

The cafe, in St Mary’s Road, Ealing, have supported the fund for many years.

CRY supporter and family friend Vicky Pearson, who accepted the cheque on behalf of the fund, said: “Claire was a regular customer at Munsons, meeting friends and holding fundraising book sales.

“Munsons holds memories for many of us and to receive this donation shows what a special place it is.”

The money will contribute towards further heart screenings to be held in Ealing next year.

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Posted by on Nov 23, 2017 in 2017, Awareness, Cardiac Risk in the Young

When Westminster met Love Island: messages from the heart of @CRY_UK

CRY, Ruth Cadbury MP

With Ruth Cadbury, MP.

CRY’s All-Party Parliamentary Group reception at the House of Commons on Wednesday, November 22, will long stay in the memory.

Firstly, because it is always nice to hear how Tom’s friends are getting on and on this occasion it was a pleasure to catch-up with Brentford and Isleworth MP Ruth Cadbury, whose son, Joe, was a schoolmate at Little Ealing Primary School. We have known Ruth for many years and she is a long-standing supporter of CRY. It is typical of Ruth, who belongs to the all-party group,  that she found the time to come to the reception and show her support.

Secondly, because, like buses, great speeches seem to come along in pairs.

CRY Monta Brown November 2017

CRY supporter Montana Brown with Ellen.

Love Island and CRY, I suspect, share pretty much the same target demographic. The choice of one of the show’s stars, CRY supporter Montana Brown, as a speaker was, therefore, inspired. Ms Brown spoke about the value of CRY’s latest publication, ‘A Friend’s Grief’, telling of how, aged 17,  she had lost a close school friend; of her feelings of disbelief; of going into shock; of waking up in the mornings not wanting to go to school and covered from head to toe in a rash. It was raw, it was from the heart, and it was one of the most honest and courageous accounts of sudden loss that I’ve heard.

As if that wasn’t enough, CRY’s chief executive, Steve Cox, concluded by delivering an incredibly powerful speech. He was passionate about what he wanted CRY to achieve and there was more than a hint of anger when he described the manner in which CRY’s research, based as it is on the UK’s largest screening programme for young people, had been ignored by the UK’s National Screening Committee.

These were two fine speeches delivered in the heart of Westminster. It would be nice to think someone was listening.

CRY Andy Scott November 2017

CRY Patron Andy Scott (third left) and family with CRY founder Alison Cox (centre) and chief executive Steve Cox (far right).

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Posted by on Nov 13, 2017 in 2017, Awareness, Cardiac Risk in the Young

‘A Friend’s Grief’ published by @CRY_UK

Tom 2014

 

Claire and I always remembered that while some folk crossed the road because they didn’t know what to say to us after Tom died, Tom’s friends – and Ellen’s too for that matter – always made a point of crossing the road to talk to us. It didn’t mean, of course, that they didn’t have their own sorrow to deal with. CRY have now bought out a new booklet ‘A Friend’s Grief.’

 

CRY launches new friends grief booklet

 

 

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Posted by on Sep 27, 2017 in 2017, Cardiac Risk in the Young, CRY screenings, Ealing

Open for booking: free November @CRY_UK heart screenings in #Ealing #London

CRY St George's launch event

The latest free heart screenings for 14-35 year olds sponsored by Tom and Claire’s Fund are now open for booking here.

The screenings take place on Sunday, November 5, at Florence Road Surgery, 26 Florence Road, London, W5 3TX. We are grateful to Dr Evans and the team for hosting the event.

If you have any queries, please contact CRY here, not the surgery or us.

The nearest tube is Ealing Broadway and there is a multi-storey car park close by at Ealing Broadway shopping centre. Parking in the nearby streets is usually metered.

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Posted by on Jul 9, 2017 in 2017, Awareness, Cardiac Risk in the Young, CRY London Bridges Walk, Fund-raising event

Ten years of crossing bridges with @CRY_UK

CRY, Bridges Walk 2017, Team Tom, July 2017

Some of Team Tom at the start of the walk.

Thank you! More than 50 people turned-out for Team Tom to mark the 10th time we have taken part in CRY’s Heart of London Bridges Walk.

This year’s walk always felt particularly significant. A decade is a long time and with the event coming before the anniversary of Tom’s death, it was redolent with memories. To see so many people make extraordinary efforts to attend, therefore, was inspiring.

CRY’s estimate at time of writing is that we were among 1,400 people who took part. Looking around Potters Fields, it was wonderful to see how many were waiting to walk.

Wonderful but troubling. A story in the papers earlier this year told of a parent who discovered their 14-year-old son dead in bed. They had never heard of CRY, never heard of cardiac screening. All the things we were saying 10 years ago.

It raises the question – has there been progress? Is it worth giving up a Sunday to slog around 10k in the heat?

We’d say ‘Yes’.

Plainly cardiac screening is still not available as of right to young people. However, CRY are screening more people than ever before, more than 23,000 last year, and their research programme is a leader in its field. The scientific case for screening appears to be gaining ground.

The walk remains a key part in CRY’s armoury, its largest public event. It is not simply the sight of people walking or the funds raised. It also raises awareness up and down the country as local media tells the stories of those taking part.

It is one battle in a long and gruelling war. Ultimately, the injustice that is 12 young people dying each week because of undiagnosed heart conditions will end. The evidence will become too strong to be ignored.

And when it does, everyone who has ever walked will have played a part:

“Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.” Margaret Mead.

Thank you for walking. It means more to us than words can say.

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Posted by on Apr 24, 2017 in 2017, Awareness, Cardiac Risk in the Young, Fund-raising event

Hannah’s towering effort raises money for @CRY_UK

CRY Hannah Dunn Spinnacker Tower, Porstmouth, April 2017

Don’t look down! Hannah gets set.

Claire’s cousin Hannah Dunn successfully abseiled down the 170 metre Spinnaker Tower in Portsmouth on Saturday, April 22, to raise money for Tom and Claire’s Fund.

Hannah said: “Well, I did it!  The most terrifying experience was when going over the edge but once on the way it was fantastic.”

Her effort raised a total of £1406 which will be split between Tom and Claire’s Fund and St. Barnabas House hospice in Worthing.

Hannah, who says she is an ‘adrenaline junky’ after jumping from 13,000 feet over Salisbury Plain to raise money for CRY in her first skydive in 2015, says she’s now planning what challenge to take on next.

If you want to support Hannah, you can still do so here.

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