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Posted by on Jul 11, 2017 in 2017, Awareness, Fund-raising event

Eagles go the extra mile to raise nearly £1800 for @CRY_UK

CRY, Ealing Eagles cheque presentation, July 2017

Thom Martini, left, with Paul Clabburn

Ealing Eagles Running Club have raised nearly £1,800 for The Tom Clabburn Memorial Fund and CRY.

Club chairman Thom Martini said: “The Eagles have supported CRY for many years through their involvement in the Ealing Half Marathon and the Andrew Carter Memorial Mile. It seemed a natural progression to make Tom’s Fund our nominated charity for 2016/17 as we believe it is important that young people have the opportunity to access cardiac screening locally. “

Thom continued: “We held a series of running and social events to raise the money and we are delighted that it will be used to support such vital work. Being runners, we tend to think that we are all fit and healthy but tragically, as we’ve seen, that is not necessarily the case.”

Many of the club’s runners take part in the Ealing Half Marathon, which has again named CRY as an associated charity partner for the 2017 event in September. Members also turn out in large numbers to support the annual Andrew Carter Memorial Mile. Andrew died of an undiagnosed heart condition while taking part in the 2014 Ealing Half Marathon and his parents allow proceeds from the race to be paid into Tom’s Fund.

Tom’s dad, Paul, said: “We are honoured to have been nominated as the Ealing Eagles charity for the year. Both individually and collectively, they have been extremely supportive to us over the years and we can only thank them for yet again putting such a tremendous effort into raising money for the Fund. They are an incredibly generous group of people.”

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Posted by on Jul 9, 2017 in 2017, Awareness, Cardiac Risk in the Young, CRY London Bridges Walk, Fund-raising event

Ten years of crossing bridges with @CRY_UK

CRY, Bridges Walk 2017, Team Tom, July 2017

Some of Team Tom at the start of the walk.

Thank you! More than 50 people turned-out for Team Tom to mark the 10th time we have taken part in CRY’s Heart of London Bridges Walk.

This year’s walk always felt particularly significant. A decade is a long time and with the event coming before the anniversary of Tom’s death, it was redolent with memories. To see so many people make extraordinary efforts to attend, therefore, was inspiring.

CRY’s estimate at time of writing is that we were among 1,400 people who took part. Looking around Potters Fields, it was wonderful to see how many were waiting to walk.

Wonderful but troubling. A story in the papers earlier this year told of a parent who discovered their 14-year-old son dead in bed. They had never heard of CRY, never heard of cardiac screening. All the things we were saying 10 years ago.

It raises the question – has there been progress? Is it worth giving up a Sunday to slog around 10k in the heat?

We’d say ‘Yes’.

Plainly cardiac screening is still not available as of right to young people. However, CRY are screening more people than ever before, more than 23,000 last year, and their research programme is a leader in its field. The scientific case for screening appears to be gaining ground.

The walk remains a key part in CRY’s armoury, its largest public event. It is not simply the sight of people walking or the funds raised. It also raises awareness up and down the country as local media tells the stories of those taking part.

It is one battle in a long and gruelling war. Ultimately, the injustice that is 12 young people dying each week because of undiagnosed heart conditions will end. The evidence will become too strong to be ignored.

And when it does, everyone who has ever walked will have played a part:

“Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.” Margaret Mead.

Thank you for walking. It means more to us than words can say.

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Posted by on May 28, 2017 in 2017, Awareness, CRY London Bridges Walk

Please join us on July 9 for @CRY_UK London Bridges Walk

Tom with Claire at a BBC roadshow

Tom with Claire at a BBC roadshow

 

CRY’s 11th Heart of London Bridges Walk will be held on Sunday, July 9. We’ll be walking again to remember Tom and Claire.

Please join us if you can – it will be our 10th year of taking part and we’d love to see you.

With all the calls on people to raise money, great if you can but you don’t have to be sponsored. The most important thing is to walk. Just bring yourself and help to raise awareness.

You can register online or on the day and full details are here.

Hope to see you there.

Paul and Ellen x

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Posted by on Apr 24, 2017 in 2017, Awareness, Cardiac Risk in the Young, Fund-raising event

Hannah’s towering effort raises money for @CRY_UK

CRY Hannah Dunn Spinnacker Tower, Porstmouth, April 2017

Don’t look down! Hannah gets set.

Claire’s cousin Hannah Dunn successfully abseiled down the 170 metre Spinnaker Tower in Portsmouth on Saturday, April 22, to raise money for Tom and Claire’s Fund.

Hannah said: “Well, I did it!  The most terrifying experience was when going over the edge but once on the way it was fantastic.”

Her effort raised a total of £1406 which will be split between Tom and Claire’s Fund and St. Barnabas House hospice in Worthing.

Hannah, who says she is an ‘adrenaline junky’ after jumping from 13,000 feet over Salisbury Plain to raise money for CRY in her first skydive in 2015, says she’s now planning what challenge to take on next.

If you want to support Hannah, you can still do so here.

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Posted by on Apr 18, 2017 in 2017, Fund-raising event

Hannah roped in for @CRY_UK abseil

Spinnaker Tower, Portsmouth, Creative Commons, author, Rhys Jones

Spinnaker Town, Portsmouth. Author: Rhys Jones. Licensed by Creative Commons.

Not content with flinging herself from planes, Claire’s cousin Hannah Dunn is now planning to abseil down the 170 metre Spinnaker Tower in Portsmouth on Saturday, April 22.

She’ll be raising money for Tom and Claire’s Fund and St. Barnabas House hospice in Worthing.

Hannah, who says she is now officially an ‘adrenaline junky’, jumped from 13,000 feet over Salisbury Plain to raise money for CRY in her first skydive in 2015.

If you want to support Hannah in her latest escapade, you can do so here.

CRY, Hannah Dunn, 2015

 

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Posted by on Apr 7, 2017 in 2017, Cardiac Risk in the Young, CRY screenings, Ealing

90 tested by @CRY_UK at #Ealing #Hanwell screenings

CRY screening at Drayton Manor High School, April, 2017

Ellen with members of the CRY team; left to right, Ralph Knox, Sheila Pitt, Dr Gemma Parry-Williams, Hannah Lowry and Muge Pancar.

Ninety young people aged between 14-35 were screened by Cardiac Risk in the Young at Drayton Manor High School, Hanwell, on April 6.

Both Tom and Ellen attended Drayton Manor, which was hosting screenings for the second time. Of those tested, six were referred for further investigation.

Ellen Clabburn said: “We’d like to thank CRY for carrying out the screenings with their usual professionalism, Drayton Manor High School for providing the facilities and, of course, all those who have raised the funds which mean the screenings can take place and be free to those attending.”

The next screenings sponsored by Tom and Claire’s Fund are planned for November in Ealing.

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