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Posted by on Nov 23, 2017 in 2017, Awareness, Cardiac Risk in the Young

When Westminster met Love Island: messages from the heart of @CRY_UK

CRY, Ruth Cadbury MP

With Ruth Cadbury, MP.

CRY’s All-Party Parliamentary Group reception at the House of Commons on Wednesday, November 22, will long stay in the memory.

Firstly, because it is always nice to hear how Tom’s friends are getting on and on this occasion it was a pleasure to catch-up with Brentford and Isleworth MP Ruth Cadbury, whose son, Joe, was a schoolmate at Little Ealing Primary School. We have known Ruth for many years and she is a long-standing supporter of CRY. It is typical of Ruth, who belongs to the all-party group,  that she found the time to come to the reception and show her support.

Secondly, because, like buses, great speeches seem to come along in pairs.

CRY Monta Brown November 2017

CRY supporter Montana Brown with Ellen.

Love Island and CRY, I suspect, share pretty much the same target demographic. The choice of one of the show’s stars, CRY supporter Montana Brown, as a speaker was, therefore, inspired. Ms Brown spoke about the value of CRY’s latest publication, ‘A Friend’s Grief’, telling of how, aged 17,  she had lost a close school friend; of her feelings of disbelief; of going into shock; of waking up in the mornings not wanting to go to school and covered from head to toe in a rash. It was raw, it was from the heart, and it was one of the most honest and courageous accounts of sudden loss that I’ve heard.

As if that wasn’t enough, CRY’s chief executive, Steve Cox, concluded by delivering an incredibly powerful speech. He was passionate about what he wanted CRY to achieve and there was more than a hint of anger when he described the manner in which CRY’s research, based as it is on the UK’s largest screening programme for young people, had been ignored by the UK’s National Screening Committee.

These were two fine speeches delivered in the heart of Westminster. It would be nice to think someone was listening.

CRY Andy Scott November 2017

CRY Patron Andy Scott (third left) and family with CRY founder Alison Cox (centre) and chief executive Steve Cox (far right).

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Posted by on Nov 13, 2017 in 2017, Awareness, Cardiac Risk in the Young

‘A Friend’s Grief’ published by @CRY_UK

Tom 2014

 

Claire and I always remembered that while some folk crossed the road because they didn’t know what to say to us after Tom died, Tom’s friends – and Ellen’s too for that matter – always made a point of crossing the road to talk to us. It didn’t mean, of course, that they didn’t have their own sorrow to deal with. CRY have now bought out a new booklet ‘A Friend’s Grief.’

 

CRY launches new friends grief booklet

 

 

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Posted by on Nov 6, 2017 in 2017, Awareness, CRY screenings

More than 90 screened by @CRY_UK in #Ealing

CRY screenings, November 2017

Left to right, Ben Mason with his father and CRY supporter, Neil, talk to Dr Joyee Basu at the screenings

CRY screened 98 young people for undiagnosed heart conditions in Ealing on Sunday, November 5.

Two people were referred for further investigation and one will have a repeat test in a year’s time.

The free screenings for 14-35-year-olds, sponsored by Tom and Claire’s fund, took place at the Florence Road surgery and Ellen Clabburn said: “We’d like to thank all those who have raised the funds which make the event possible.

“Because of people’s generosity, the Fund has enabled CRY to screen more than 200 people a year since 2009, over 2,600 in total.

“We appreciate that there are lots of other causes but we’d ask people to consider supporting the Fund. The screenings are always over-subscribed and, with growing awareness of the complexity of cardiac conditions in the young, there is a need and demand for such events.

“We’re also very grateful to the CRY team for their professionalism and care on the day and to Dr David Evans and his team for yet again giving us a base for the screenings.”

There will be further screenings in Ealing in 2018.

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Posted by on Oct 2, 2017 in 2017, Awareness, CRY screenings, Ealing

Fully booked: @CRY_UK screenings for November 5 in #Ealing

CRY logo

The latest free heart screenings for 14-35 year olds sponsored by Tom and Claire’s Fund are now fully booked.

If you have booked a screening, please use it or let CRY know if you have to cancel. The event is over-subscribed and someone else will be able to take your place.

If you want to go on a waiting list for the event, please contact CRY here.

If you have any other queries, please contact CRY here, not the surgery or us.

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Posted by on Sep 27, 2017 in 2017, Cardiac Risk in the Young, CRY screenings, Ealing

Open for booking: free November @CRY_UK heart screenings in #Ealing #London

CRY St George's launch event

The latest free heart screenings for 14-35 year olds sponsored by Tom and Claire’s Fund are now open for booking here.

The screenings take place on Sunday, November 5, at Florence Road Surgery, 26 Florence Road, London, W5 3TX. We are grateful to Dr Evans and the team for hosting the event.

If you have any queries, please contact CRY here, not the surgery or us.

The nearest tube is Ealing Broadway and there is a multi-storey car park close by at Ealing Broadway shopping centre. Parking in the nearby streets is usually metered.

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Posted by on Sep 3, 2017 in 2017, Awareness, Fund-raising event

Runners raise more than £400 in an hour for @CRY_UK #Ealing #London

CRY, Andrew Carter Memorial Mile, September 2017

Andrew’s parents with runners at the start of the race. Photo montage: Sandra Courtney.

More than £400 has been raised for Tom’s Fund and CRY by participants in the Andrew Carter Memorial Mile on Saturday, September 2.

Almost 50 runners took part in the event in Lammas Park, Ealing, which was hosted by Ealing Half Marathon CIC.

“We had a lovely morning in the sun” said Sandra Courtney, for the organisers. “Thank you to all the runners and supporters who attended. We raised the money in just an hour and we hope there’s more to be donated online.”

The event is held each year in memory of Andrew, an Ealing resident who passed away after the 2014 Ealing Half Marathon.

Paul Clabburn said: “Once again we are extremely grateful to all who took part and to Andrew’s parents for donating via Tom’s Fund, thereby supporting local heart screening for young people.”

The next screenings in Ealing will be held in November.

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