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When Westminster met Love Island: messages from the heart of @CRY_UK

Posted by on Nov 23, 2017 in 2017, Awareness, Cardiac Risk in the Young

CRY, Ruth Cadbury MP

With Ruth Cadbury, MP.

CRY’s All-Party Parliamentary Group reception at the House of Commons on Wednesday, November 22, will long stay in the memory.

Firstly, because it is always nice to hear how Tom’s friends are getting on and on this occasion it was a pleasure to catch-up with Brentford and Isleworth MP Ruth Cadbury, whose son, Joe, was a schoolmate at Little Ealing Primary School. We have known Ruth for many years and she is a long-standing supporter of CRY. It is typical of Ruth, who belongs to the all-party group,  that she found the time to come to the reception and show her support.

Secondly, because, like buses, great speeches seem to come along in pairs.

CRY Monta Brown November 2017

CRY supporter Montana Brown with Ellen.

Love Island and CRY, I suspect, share pretty much the same target demographic. The choice of one of the show’s stars, CRY supporter Montana Brown, as a speaker was, therefore, inspired. Ms Brown spoke about the value of CRY’s latest publication, ‘A Friend’s Grief’, telling of how, aged 17,  she had lost a close school friend; of her feelings of disbelief; of going into shock; of waking up in the mornings not wanting to go to school and covered from head to toe in a rash. It was raw, it was from the heart, and it was one of the most honest and courageous accounts of sudden loss that I’ve heard.

As if that wasn’t enough, CRY’s chief executive, Steve Cox, concluded by delivering an incredibly powerful speech. He was passionate about what he wanted CRY to achieve and there was more than a hint of anger when he described the manner in which CRY’s research, based as it is on the UK’s largest screening programme for young people, had been ignored by the UK’s National Screening Committee.

These were two fine speeches delivered in the heart of Westminster. It would be nice to think someone was listening.

CRY Andy Scott November 2017

CRY Patron Andy Scott (third left) and family with CRY founder Alison Cox (centre) and chief executive Steve Cox (far right).

‘A Friend’s Grief’ published by @CRY_UK

Posted by on Nov 13, 2017 in 2017, Awareness, Cardiac Risk in the Young

Tom 2014

 

Claire and I always remembered that while some folk crossed the road because they didn’t know what to say to us after Tom died, Tom’s friends – and Ellen’s too for that matter – always made a point of crossing the road to talk to us. It didn’t mean, of course, that they didn’t have their own sorrow to deal with. CRY have now bought out a new booklet ‘A Friend’s Grief.’

 

CRY launches new friends grief booklet

 

 

More than 90 screened by @CRY_UK in #Ealing

Posted by on Nov 6, 2017 in 2017, Awareness, CRY screenings

CRY screenings, November 2017

Left to right, Ben Mason with his father and CRY supporter, Neil, talk to Dr Joyee Basu at the screenings

CRY screened 98 young people for undiagnosed heart conditions in Ealing on Sunday, November 5.

Two people were referred for further investigation and one will have a repeat test in a year’s time.

The free screenings for 14-35-year-olds, sponsored by Tom and Claire’s fund, took place at the Florence Road surgery and Ellen Clabburn said: “We’d like to thank all those who have raised the funds which make the event possible.

“Because of people’s generosity, the Fund has enabled CRY to screen more than 200 people a year since 2009, over 2,600 in total.

“We appreciate that there are lots of other causes but we’d ask people to consider supporting the Fund. The screenings are always over-subscribed and, with growing awareness of the complexity of cardiac conditions in the young, there is a need and demand for such events.

“We’re also very grateful to the CRY team for their professionalism and care on the day and to Dr David Evans and his team for yet again giving us a base for the screenings.”

There will be further screenings in Ealing in 2018.

Fully booked: @CRY_UK screenings for November 5 in #Ealing

Posted by on Oct 2, 2017 in 2017, Awareness, CRY screenings, Ealing

CRY logo

The latest free heart screenings for 14-35 year olds sponsored by Tom and Claire’s Fund are now fully booked.

If you have booked a screening, please use it or let CRY know if you have to cancel. The event is over-subscribed and someone else will be able to take your place.

If you want to go on a waiting list for the event, please contact CRY here.

If you have any other queries, please contact CRY here, not the surgery or us.

Open for booking: free November @CRY_UK heart screenings in #Ealing #London

Posted by on Sep 27, 2017 in 2017, Cardiac Risk in the Young, CRY screenings, Ealing

CRY St George's launch event

The latest free heart screenings for 14-35 year olds sponsored by Tom and Claire’s Fund are now open for booking here.

The screenings take place on Sunday, November 5, at Florence Road Surgery, 26 Florence Road, London, W5 3TX. We are grateful to Dr Evans and the team for hosting the event.

If you have any queries, please contact CRY here, not the surgery or us.

The nearest tube is Ealing Broadway and there is a multi-storey car park close by at Ealing Broadway shopping centre. Parking in the nearby streets is usually metered.

Runners raise more than £400 in an hour for @CRY_UK #Ealing #London

Posted by on Sep 3, 2017 in 2017, Awareness, Fund-raising event

CRY, Andrew Carter Memorial Mile, September 2017

Andrew’s parents with runners at the start of the race. Photo montage: Sandra Courtney.

More than £400 has been raised for Tom’s Fund and CRY by participants in the Andrew Carter Memorial Mile on Saturday, September 2.

Almost 50 runners took part in the event in Lammas Park, Ealing, which was hosted by Ealing Half Marathon CIC.

“We had a lovely morning in the sun” said Sandra Courtney, for the organisers. “Thank you to all the runners and supporters who attended. We raised the money in just an hour and we hope there’s more to be donated online.”

The event is held each year in memory of Andrew, an Ealing resident who passed away after the 2014 Ealing Half Marathon.

Paul Clabburn said: “Once again we are extremely grateful to all who took part and to Andrew’s parents for donating via Tom’s Fund, thereby supporting local heart screening for young people.”

The next screenings in Ealing will be held in November.

Run for @CRY_UK in #Ealing’s Lammas Park this weekend

Posted by on Aug 29, 2017 in 2017, Awareness, Ealing, Fund-raising event, The Andrew Carter Memorial Mile

Andrew Carter Memorial Mile 2016

Some of the 2016 runners ready for the off.

There’s still time to sign-up for this year’s Andrew Carter Memorial Mile, which takes place in Lammas Park, Ealing, on Saturday, September 2.

The run is held in tribute to Andrew, who collapsed from a cardiac arrest shortly before the end of the 2014 Ealing Half Marathon. He passed away the following Wednesday.

Every year since then, a memorial run has been organised in aid of Tom’s Fund and CRY as part of the Mile Series organised by the event organisers of the Ealing Half Marathon.

They say: “This special Mile event is held free of charge to anyone wanting to run, jog or walk our Mile Series course.” They add: “All we ask is that all runners make a donation to the collection tin on the day or donate online here to the Tom Clabburn Fund.”

You can sign up for the run here.

Eagles go the extra mile to raise nearly £1800 for @CRY_UK

Posted by on Jul 11, 2017 in 2017, Awareness, Fund-raising event

CRY, Ealing Eagles cheque presentation, July 2017

Thom Martini, left, with Paul Clabburn

Ealing Eagles Running Club have raised nearly £1,800 for The Tom Clabburn Memorial Fund and CRY.

Club chairman Thom Martini said: “The Eagles have supported CRY for many years through their involvement in the Ealing Half Marathon and the Andrew Carter Memorial Mile. It seemed a natural progression to make Tom’s Fund our nominated charity for 2016/17 as we believe it is important that young people have the opportunity to access cardiac screening locally. “

Thom continued: “We held a series of running and social events to raise the money and we are delighted that it will be used to support such vital work. Being runners, we tend to think that we are all fit and healthy but tragically, as we’ve seen, that is not necessarily the case.”

Many of the club’s runners take part in the Ealing Half Marathon, which has again named CRY as an associated charity partner for the 2017 event in September. Members also turn out in large numbers to support the annual Andrew Carter Memorial Mile. Andrew died of an undiagnosed heart condition while taking part in the 2014 Ealing Half Marathon and his parents allow proceeds from the race to be paid into Tom’s Fund.

Tom’s dad, Paul, said: “We are honoured to have been nominated as the Ealing Eagles charity for the year. Both individually and collectively, they have been extremely supportive to us over the years and we can only thank them for yet again putting such a tremendous effort into raising money for the Fund. They are an incredibly generous group of people.”